Reduction after bad flare

[Smokygirl]

Good morning my wonderful Guru friends. More advice please. So, flare at 3.00 mg. at end of DSNS reduction from 3.5mg. Went up to 8 mg for two weeks. Flared up again on 7th day so continued for another week on 8mg as per advice. Good at moment thankfully.

This morning took 6 mg. If I stay on 6 mg for a week (hopefully all being well) is it safe to then drop to 4 mg ? It will have been three weeks ? And when can I drop to 3.5 mg. ? all being OK?

I was so happy on 3.5.mg for four months —- had cataracts done — had a colonoscopy—- all was fine! So grateful for your advice and sending hugs! Xxx

[DorsetLady PMRGCAuk volunteer]

So long as feel okay on 6mg at the end of the week then you should be alright to drop down to 4mg..but I’d stay at 4mg for 3-5 weeks before you restart taper proper.

[Smokygirl in reply to DorsetLady]

Thank you so much dear DL! Really hope all goes smoothly! Xxx

[SheffieldJane]

Well managed and through a period of significant stress! For these reasons, I would be inclined to slow taper by half a mg every 4 weeks, taking stock at each stage. Listen carefully to your body, this is a tricky stage and your Adrenal function needs time to realise that it needs to function on its own. I think it pays off in the end.

[Smokygirl in reply to SheffieldJane]

Thank you so much SJ. It’s a never ending story for most of us isn’t it! Xxxx

[SheffieldJane]

Golly I hope note. 🌈

[PMRpro Ambassador]

Sounds as if all that excitement poked the sleeping gorilla and upped the disease activity a bit. It will let you go lower when it has gone to sleep again!

[Smokygirl in reply to PMRpro]

The problem is there is always something! It’s life —- and I’m a worrier like many of us! Xxx