What to do next?

[Bobbury]

I apologise for being a pain but I need some advice with my ongoing problem.

The contiuing story, i was on 7mg had a flare, went to 10mg for 3 days. Had a flare on 10mg. Took it upon myself to up it to 15mg. Im now in my 3rd day on 15mg and everything is okiish. Stiff legs but bearable. Have to push myself do something. Phoned GP the earliest I can speak to the GP is next Friday!! Don't know what to do next, do I carry on 15mg, if so for how long.

Thanks for reading this....

[PMRpro Ambassador]

Had you been doing anything to encourage pain that might not be directly a flare? Have you got a cold or any signs of another infection?

I'd certainly give it another couple of days at 15mg and see how you get on. But I doubt you will get back down to 7mg easily, I think I would ring back and demand an emergency call because having to wait a week for advice/approval of your action is not on. And it isn't an ED problem.

[Bobbury in reply to PMRpro]

Thanks Pro. I can't think of anything that has ccaused these flares. I walk the dog most days then I do stuff around the house. maybe I'm doing too much. Usually when I do stuff I don;t stop until I'm finished what I'm doing. Thinking on maybe I should take breaks, I just don't know. I don't do building work or anything like that I just sort of tinker about just keep myself busy. I will try again with the GP. When first explaining my problem with the receptionist she didn't know or even understand what PMR is!! Embarrassing really trying to explain in front of a queue of people. No good phoning cause they don't answer the phone so I went personally.

[PMRpro Ambassador in reply to Bobbury]

So the receptionist needs some training. Not good enough. Try telling her it is an autoimmune rheumatic disease that causes extreme pain and stiffness and disability when medication isn't correctly adjusted, Ordinary painkillers don't work.

You have heard the joke haven't you?

reddit.com/r/Jokes/comments...

Even a slight stumble can do it ...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

😂🤣

[Bobbury in reply to PMRpro]

Brilliant. Cheered me up!😂😂

[DorsetLady PMRGCAuk volunteer]

In a flare situation you can stay on higher for up to 14 days without impacting on the drop back down -but as you flared again on 10mg you probably do need medical advice.

[Bobbury]

Thanks Dorset lady for your advice, much appreciated.