Carnivore diet: Hi, I'm age 47, a builder and been... - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

Carnivore diet

Painblame profile image
43 Replies

Hi, I'm age 47, a builder and been told I've got PMR. I've been on prednisone for two and a half years, starting on 40mg then 20mg and managed to reduce to 2.5mg slowly then start flaring , so jump back up to 5 each time. My latest reduction was to 2.5 then stop all together as my doctor says I can't get my back surgery on prednisone. My pains are back and I'm wondering if anyone has tried the carnivore diet? I'm really getting desperate as really need my back surgery. Just managing to keep it together for work at this stage but think the pmr will soon take over again like at the start. Any advice would be much appreciated

Written by
Painblame profile image
Painblame
To view profiles and participate in discussions please or .
Read more about...
43 Replies
PMRpro profile image
PMRproAmbassador

Hi and welcome - my, you are young for PMR aren't you! Lucky anyone accepted that may be what it is.

If the underlying cause of the symptoms we call PMR is still active then inadequate pred is going to result in a build up of inflammation until there is enough to cause symptoms as severe as at the outset.

There are two reason you can't get to 2.5mg and just stop - one is that even if 2.5mg is enough (and it sounds as if it isn't) even below that 1mg can be plenty to stop the inflammation building up. The other is adrenal insufficiency, 2.5mg is plenty to function on from that point of view and just stopping it puts you at a very real risk of developing an adrenal crisis - especially if they reason is for major surgery,

Your doctor obviously doesn't understand that aspect - I'm not familiar with your system but is that your GP/family doctor making this pronouncement or your spinal surgeon? Do you have a rheumatologist - you should being so young.

But for your main question - no, there are no diets that are substitutes for pred. By cutting the pro-inflammatory parts of your diet - processed foods, carbs, added sugar, you may find you get away with a bit less pred, but nothing substitutes for pred entirely.

How important is rehab after your surgery? The current pain aside - if they let the PMR inflammation resurge, you will struggle to mobilise post-op and that won't be good either. It isn;t as simple as pred bad, no pred good.

Painblame profile image
Painblame in reply to PMRpro

Thank you, yes from what I here I'm young for pmr, and feel like it's really robbing me of some of my best years. Ive asked my GP if i can see a rheumatologist, his answer was not this time, I don't feel like he understands pmr or gives great advise. Do you think I go 10mg for a few days to get on top of things? And then stay on 5mg.Thanks the help on here has helped me greatly

PMRpro profile image
PMRproAmbassador in reply to Painblame

I would definitely want a rheumy - because ALL the guidelines recommend it for atypical cases and you are VERY atypical, When you are tapering are you working on 2.5mg steps? Below 10mg it should not be more than 1mg at a time and below 5mg 1/2mg at a time is better.

I agree - I don't think your GP is up to speed at all. Even the diagnosis with so little questioning suggests they aren't too au fait with it.

Painblame profile image
Painblame in reply to PMRpro

I taper at 1mg a week from 20 to 8. Then I went half a mg drop from 8mg every 3 weeks, so it was really slow. I'll talk to my GP again this week, see if he can get me a rheumatologist appointment.

PMRpro profile image
PMRproAmbassador in reply to Painblame

1mg a week wasn't slow - if you can manage it it is brilliant, I think HeronNS did originally, but for most people they need at least 2 weeks to know the new dose is still enough and some 3 weeks. But your 1/2mg at a time now is good. But maybe as you get lower, you may need to go slower. Some do as little as 1/4mg at a time!

Exflex profile image
Exflex in reply to PMRpro

I do 1/4 tapering from 1.5 to 1.25 over 5W. As long as I get there that’s the main thing.

PMRpro profile image
PMRproAmbassador in reply to Exflex

Quite - and it it takes 10 weeks instead of 5 but you get there - it isn't slow when it works.

HeronNS profile image
HeronNS in reply to Painblame

My story at the beginning of treatment: 15 mg (with breakfast) for five weeks, then drop by 1 mg per week, with instructions to stop tapering if I felt symptoms return. I did feel this at 9 mg. Went back to 10 for about three weeks, then started using the Dead Slow Nearly Stop taper plan (with my doctor's approval, but I'd have done it anyway). From all the reading of others' stories I believe I did so well because I must be metabolising pred very efficiently.

I was at 3 mg by the end of the first year, but only got to 1.5 by the end of the second. This whole adventure started in 2015 and I still take pred, although most of the time since the initial taper it has been at or around 2 or1.5 mg. Attempts to achieve zero have so far been unsuccessful.

What reason does your GP give for not referring you to a rheumatologist?

And as far as surgery on pred - the reason they prefer you to not be on pred is because it may slow healing. But if you are at a low dose, and if you have been taking pred for some time, it is much better to continue with the medication. In fact you may well be given a top up by the anaesthetist in order to prevent problems from adrenal insufficiency. This needs to be discussed with the surgeon and, if given no joy, with the anaesthetist.

Unfortunately for all the many people who ask on the forum if there is anything beside pred which helps with PMR/GCA the answer really is still, no. A sensible balanced diet restricting empty carbs is, generally speaking, best. I personally find I do better if I don't eat as much wheat as I used to in the old pre-illness days.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Do you mean your surgeon has told you he won't operate whilst you are on steroids? and has he really explained why? Most are a bit worried about higher doses, but below 5mg is not usually considered a great problem..

..and really you should just "stop" - even at 2.5mg - you are lucky you didn't go into adrenal crisis...and yes your PMR is likely to flare up again.

There are others on here who have had surgery whilst still on Pred, hopefully they will be along shortly to give their experiences...

Painblame profile image
Painblame in reply to DorsetLady

Thanks, can you explain what an adrenal crisis is please.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Painblame

This link explains what happens when you are on long term steroids [and explains what can happen if your adrenals don't return to functioning as you get lower on Pred - it is extreme and rare -but you need to be aware] -

healthunlocked.com/pmrgcauk...

Broseley profile image
Broseley in reply to DorsetLady

My old teaching colleague has just told me he has had PMR for 10 years. Whenever he tapers below 5mg pred his symptoms come back. He has been told that because he has been on pred for so long, his adrenals have stopped working permanently, and he has pred induced Addisons disease. He has been told he will be on pred for the rest of his life. I referred him to this forum as I somehow feel this cannot be the case. However I don't think he's the sort to use forums.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Broseley

Pity he doesn’t use forums….

It may be correct that his adrenals don’t recover -but has he seen an adrenal specialist -an endocrinologist and had adrenals tested? Or just been told that by GP or Rheumy?

As for symptoms returning below 5mg - what exactly? Sometimes PMR symptoms and adrenals struggling can produce similar affects.

Does he have a family member or someone who could help him navigate this forum -and perhaps get him some answers…

Broseley profile image
Broseley in reply to DorsetLady

His endocrinologist told him this. I suggested hydrocortisone might be a long term alternative to pred; I have a friend who is on that having had her pituitary gland removed. She was initially put on pred but is now on hydro.I don't think it's navigation that's the problem. Just a typical UK man....

PMRpro profile image
PMRproAmbassador in reply to Broseley

There has been someone on the forum who was on pred for 13+ years with a lifetime history of high dose pred use who got off pred once given Actemra or others even simply by very slow patient tapering. It takes time - and there are people in the same boat after only a few years on pred, so there are no hard and fast rules. Some doctors just assume things ...

Miserere profile image
Miserere

It seems to work for some people - I don't have the nerve to try it - wish I did. It just seems very strange not to eat vegetables. There is a Facebook group - Richard's Keto for health (I do eat a very low carb diet) if you want to do more research.

paintpots profile image
paintpots in reply to Miserere

I was on 4mg prior to cancer surgery and the surgeon put it up to 6mg a day for the week I was in hospital then back to 4mg and continued to taper on the Dead slow. A year later no problems but still on 1 1/4 mg.

agingfeminist profile image
agingfeminist

Lots of people have hoped a change in diet makes a difference...it hasn't helped anyone....good luck with the surgery...what a tough time you are having...

Seekingasolution profile image
Seekingasolution in reply to agingfeminist

a plant based diet is helping me :)

Telian profile image
Telian

I was on 20mg prior to cancer surgery - plus intravenous during and following surgery. I had no problem healing. Speak to your anaesthetist, they are fantastic and I’ve had lots of surgeries. You’ve been given info on Adrenals which you must read and understand to be able to have any conversation with your surgeon.

Nightingales profile image
Nightingales

is it your GP or back surgeon who is saying you have to be off the prednisolone for surgery. I am in the UK and had both shoulder and back surgery on 25 to 20 mg . In fact the surgeons gave me a boost of steroids during surgery to help my body cope with the added stress. I hope you can get it resolved. It must be awful trying to work with back pain and PMR.

Missus835 profile image
Missus835

Hi and g'day. You are so young to have PMR. I'm 73 and that's still too young in my books. LOL. I think your GP is handing you a crock. Maybe not on purpose, because they truly don't know a lot about this autoimmune disease. Insist on that Rheumy referral, although they often don't know much more. You're in the best place with this forum and will get the most up-to-date info right here. But you do need to consult with your GP. Too low a dose of Pred and the inflammation will start to build up like drops in a bucket, until it overflows into a flare. Low carb diet (or good carb diet) which I'm trying so hard to do right now is best. Avoid sugar (which I'm terrible with). Also avoiding salt.

I'm at 40 mg. Pred and will try dropping to 35 mg. this week. This is NOT a slow taper. Once I'm at 20 mg. I will start the dead slow taper again. I had a GCA scare in Jan. 2023 and they immediately put me at 60 mg (this to avoid my vision being effected). Back surgery is no fun. I've had two of them. All the best to you. Your quality of life is extremely important and if a slightly higher dose of Pred helps with the pain...you know it's working. Also - check with your surgeon about a higher dose to avoid adrenal crisis. Don't accept a bottom line "no".

The carnivore diet? Is that mainly red meat? Fish and chicken and other high protein foods sounds less drastic. Cheers!

ShadyLady165 profile image
ShadyLady165

If you want to know more about the carnivore diet, check out Shawn Baker's website. He's an MD who's been carnivore for over six years now and it certainly doesn't look as if it's hurting him. His website has lots of information on it, including other people who've been enormously helped by a carnivore diet. Good luck!

Hildalew profile image
Hildalew

Hi. This is my second attempt at a reply - I 'lost' the first half by doing a wrong thing.

This will be very much shorter!

I recommend you have a look at the slow taper schemes that are to be found somewhere among the 'topics'. And if you are looking for 'diet' or nutrition advice - have a look for that topic too.

I'm a bit rubbish on 'proper' knowledge - but I do know that PMR is about our system getting overexcited when it goes into 'defence' mode and produces too much of the good things that it is supposed to produce and that creates inflammation which equals pain.

The diets I have looked at use the word 'anti-inflammatory' a lot. Red meat is definitely on the 'avoid' list, so I suspect 'the carnivore diet' would not be on the recommended list!

Please look at the Topics listed on this website - Nutrition is on the list somewhere.

PS I'm 83 (she/her) and was diagnosed in Autumn 2018. Crossing my fingers I got down to zero prednisolone a couple of weeks ago.

I thank the lucky star that led me to this website. The advice and personal experiences to be found on here have, without doubt, saved me from the extra pain and distress that a not-quite-fully-competent/experienced rheumatologist could have unwittingly caused me.

Keep reading this bulletin and asking questions. It will be uncomfortable for a while but you'll be fine.

PS I had minor surgery while 'on prednisolone': 'fraid I don't remember whether I was asked to halt pred in advance - but what I do remember was that it was wonderful when I came round and for a few days while the general anaesthetic was still working and hadn't yet left my system.

Best wishes.

Hildalew

PMR2011 profile image
PMR2011

I don’t understand why you can’t have back surgery while on Pred. I had my appendix removed whilst on 7 mg then 8 inches of my colon removed whilst on 5mg. As a matter of fact, the anesthesiologist gave a bonus dose just before surgery of hydrocortisone since my adrenals would need a boost to manage the stress from surgery.

You might want to talk to your neurosurgeon. Good luck!

Swdai profile image
Swdai

sorry to hear your predicament but just wanted to mention re operation & preds. I had an urgent operation on my Achilles Tendon last year - I had a tendon transplant - I was on 11mgs at that point . My consultant was ‘happy’ to undertake the op as it was a necessary one and I was warned re infection risk due to weakened immune system - I am three year into PMR .

I am waiting to have the other ankle replaced and am now on the waiting list as I am down to 7mgs this being the the maximum at which my consultant says he will operate other than underurgent / emergency ops . . It is all down to infection risk at the end of the day . My Achilles had to be done on 11mgs and I was pumped with anti biotics to help my immune system - I recovered well without any infection.

There will be infection risks with all operations but I think your GP is out of date with operational procedures & you should discuss with a consultant as to your daily intake of pred . Most consultants will operate on 7.5 msg or under .

oscarandchloe profile image
oscarandchloe

Hi Painblame, last year I had both hip joints replaced, 7 months in-between first and second surgery. I stayed on 5mg Pred for the whole year as I'm stable on that with no PMR symptoms or the original GCA. My surgeon was perfectly happy with that and the anaesthetist took good care of me, giving me a boost while in surgery to help my body cope with the stress. I healed well, in fact like lightning after the second surgery, no swelling and almost pain-free - walking unaided after two weeks. Good luck with getting the professional medical help that you need.

Blackeye-susan profile image
Blackeye-susan

Hi Painblame. I know that diet cannot substitute for prednisone. I have been diagnosed with PMR for just 8-9 months. I saw reports and online information about the Lion's diet that has helped people with autoimmune diseases like MS, rheumatoid arthritis and lupus. I was at 7 mg/day prednisone to control my PMR. At this juncture in my life, I decided what the heck I am going to give it a try. I followed the Lion's diet which is a stricter version of the carnivore diet. you can eat only meat/fat from beef, venison, lamb or elk with ample salt and only water/tea/coffee with no sugar or cream. I did this diet for 1 month then migrated to the carnivore diet. Within 2 days on the lion's diet, my face around my eyes was no longer bloated. Within the week my moon face was shrinking, and I felt great. My energy levels were back, and I was able to do my previous activities in a day without feeling totally exhausted. I have lost weight and even my bloat from the prednisone is gone. I have reduced my prednisone slowly as I did not want to put too much faith in the diet. I am no longer prediabetic and unbelievably all of my blood work that has been out of whack for 5 years have moved back into the normal range. My kidney filtration rate has gone from 61 up to 88.

The lions diet website which is led by a young lady, who has had her hip and ankle replaced due to rheumatoid arthritis swears that this diet has put her in remission. Check it out. liondiet.com/

I read online a doctor who promotes the lion's diet for auto immune diseases, stated that the diet places your body in ketosis like the ketone diet except that there are no vegetables allowed. Vegetables contain components that can aggravate your immune system. per him. He stated that when your body is in ketosis and does not have access to quick energy from sugar and carbs, it will purge excess defective cells and multiple types of immune cells. That is why, he claims that the diet helps with auto immune disorders. They ask for no money just tell you what they did and provide a forum to ask questions. That is why I tried it. I am still on 4.5 mg prednisone and slowly decreasing per the recommendation's others have noted in the comments. I would not put faith in the diet to reduce quickly, but I feel great and before I was tired and felt spent just walking out to the garden.

What is the harm in trying it for 1 month. That is what I did and was impressed with how I feel that I will be changing my diet for good to a carnivore/keto based diet with no/minimal sugar and carbs,

jarn profile image
jarn in reply to Blackeye-susan

Enjoyed your post re: carnivore. Has it cleared y our psoriasis? My question is just what do you eat for breakfast with it? Notice there is no Pork? Strictly beef/lamb? Curious how to work around a full day on only meat or are eggs allowed? Thank you for more clarification.

Jarn

Blackeye-susan profile image
Blackeye-susan in reply to jarn

There is a difference between the carnivore diet and the lion's diet. The lion's diet is very restrictive. I ate steak or ground beef, roast and lamb for breakfast when I was on the lion's diet. The diet instructs you to eat until full. I found that my hunger decreased, and I was eating a mid-morning breakfast and then roast or hamburger or steak for dinner. It seems like it is boring, but you lose the cravings, and just feeling better helped me to stick with it. I decided up front that I was going to try the lion's diet for 4 weeks. After the 4 weeks, I moved to carnivore which adds in eggs, pork, poultry, fish and cheeses. I now eat eggs and bacon for breakfast. Meat and cheese for lunch and a different meat for dinner. I like the carnivore diet better as there are more choices. It is an elimination diet and a slow introduction of foods to see what foods effect your immune system. I cannot say if my psoriasis is different as I am on methotrexate, and it had already substantially reduced it. I just know I feel much better and look like my old self. I know the diet helped me to feel better. There are people who stay on the diet for years. I will not be one of them unless when I add low carb vegetables back into my diet, I see issues returning. Good luck and check out the lion's diet web site and the carnivore diet website. Both are informative.

jarn profile image
jarn in reply to Blackeye-susan

Most helpful and thank you for responding. I did check out the website and it is full of info with recipes. Will see how it goes!

benhemp profile image
benhemp in reply to Blackeye-susan

Thanks for your post! I thought I'd chime in here with my experience of the carnivore diet now that I am a little over six weeks into it.

First, my background. I am 70 years old and have three diagnoses: psoriatic arthritis (I had symptoms as a teen, it became less frequent through my 20s and 30s,I had sausage toe flares at age 40, then flares increased in frequency as time passed, until I was finally diagnosed in 2010), fibromyalgia (diagnosed around age 40), and PSA (sudden onset of shoulder and neck stiffness and pain in 2019). In 2019 I did an incorrectly-managed course of prednisone that lasted about 8 months; started at 20mg , then 15, then 12.5, then 10, then drop by 1 every two weeks; the rheumy told me to taper as described, but never told me to stop and back up if the pain returned, which it did around 9mg. At the end of the taper, covid was starting, so we both agreed it was a bad time to be on prednisone with a lowered immune system. So I have not been on prednisone since then. In September this year, my pain and stiffness had become bad enough that I decided to go back to a rheumy (a different one recommended by a friend who was under her care for psoriatic arthritis and had good results) and was given an appointment for mid-December (earliest opening, three months out). Knowing that I'd be seeing her in 3 months, and that prednisone (for PSA) or methotrexate (for psoriatic arthritis) were likely to be prescribed, I decided I should use the three months of waiting for an alternative treatment in case these could be avoided. I decided to go on the carnivore diet because of multiple testimonies of people with autoimmune conditions finding it helpful. Michaela Peterson's experience was one such, but the clincher for me was the Harvard Carnivore Diet Study (doctorkiltz.com/the-harvard... of over 2000 carnivores in which 85% of those with autoimmune conditions saying they had found complete or substantial remission of their symptoms.

I have now been on the diet for 6+ weeks. The first four days I felt crappy as my body switched from glucose metabolism to ketone metabolism. This has been labeled the "keto flu". This disappeared after 4 days. Two weeks into it, my pain levels subsided by at least two-thirds. This has continued downwards, but seems to have leveled off; it has not gone completely to zero, but the improvement has been huge. Prior to this, any significant strenuous physical activity (I live in a rural area and do things like gardening, splitting firewood, and moving hay bales) would cause me a muscle pain flare that would last for days (arms, shoulders, hips, and especially, rib muscles). Now I am able to do those things without the nasty flareup; I just get normal muscle aches that last a day. I have seen a significant increase in my energy levels, and have lost 10 pounds without trying (another 10, and I will be at my ideal weight). People say that they can see a difference in my health, and they are mostly remarking on how energetic I am. Another benefit; my neck and shoulder range of motion has improved, a great benefit to being able to look left when entering highways. I am definitely less inflamed.

What am I eating: fatty beef and venison (ruminants) are preferred; salmon; eggs and bacon; chicken; pork; and certain dairy products (high fat 10% Greek yogurt, sour cream, and cheese; heavy cream for my coffee -- no milk or half and half because these have lactose). I also eat salt and small amounts of mushroom or onion to flavor the meats. People recommending the diet say to try it for 30 days to see if it helps; if it does, try it for 3 months or 6 months.

My cardiologist doesn't like my diet, because he is concerned about its effect on cholesterol levels. But he said "There's a lot to be said for such a large reduction in pain and improved quality of life; go ahead with it for six months and I'll check your blood markers then." I'm not too concerned about my blood markers; I've been blessed with low cholesterol levels all my life.

My GP, a personal friend, says that ketogenic diets may be helping inflamed people because, with little glucose in one's system, your insulin levels are kept low, and there is some thinking that insulin itself is inflammatory. (Just so you know, I am not a diabetic.)

I can't say this is my preferred diet; I've always had a very varied healthy diet with lots of vegetables and low amounts of sweets (my mother was a health nut). I miss the variety, but I am loving the improvement. I plan to continue this for six months to get the cardiologist's blood results, and then see what foods I can reintroduce one by one.

I still plan to see the rheumy in mid-December. I would say the diet has made the greatest difference to my PSA problems and, to a lesser extent, the psoriatic arthritis. I would have to say my fibro symptoms are less noticable than the PSA or psoriatic arthritis; my old rheumy says that you usually notice your worst malady and the others, still present, fade into the background). I am left with a decision as to whether to take the benefit I've gotten from the diet and avoid the prednisone (and possibly the methotrexate; I'd rather be put on a biologic, but they won't do that unless you try and find the MTX unacceptable); I think it's a risk/reward tradeoff; I'm hopeful the rheumy may have good advice about this.

I took the time to write all this out (sorry it's so long) in case some of it is helpful to someone out there.

PMRpro profile image
PMRproAmbassador in reply to benhemp

Why FATTY beef and venison - which is very low in fat?

benhemp profile image
benhemp in reply to PMRpro

The carnivore diet recommends increasing your fat intake because the fats, not the proteins, are the primary energy source in the diet. Your body needs the fats, which break down into ketones, for energy since you are not getting carbohydrates which break down into glucose.

You are right that venison is low in fat (in the meat), but venison like the white-tailed deer we hunt here in NY state have plenty of fat; it is just on the outside of the muscle instead of marbled throughout it.

Your question reminded me that I left out butter and lard as recommended items in the diet; again, these are energy sources. Since I love plain yogurt (remember, my mother was a health nut), I tend to turn to the 10% Greek yogurt for adding fat to my diet. (What am I going to put the butter on? I'm not allowed bread!)

Another item I forgot to mention is that I am allowed to have plain kefir (we culture our own), another thing that my mother taught me to love. Kefir, like other cultured dairy products, has almost no lactose, the lactose having been consumed by the culture.

Yet another comment I forgot to make: the carnivore diet is more restrictive than the ketogenic diet because the carnivore diet leaves out many more foods. However, it is much easier to follow the carnivore diet because it is by definition ketogenic, since it has almost no carbohydrates, while the ketogenic diet allows a small amount of carbohydrates per day, which puts ketogenic dieters in the mode of always counting carbs to make sure they don't have too many. Carnivores don't have to count carbs.

PMRpro profile image
PMRproAmbassador in reply to benhemp

Yes I know that aspect - but why fat beef and VENISON which is particularly LOW in fat.

benhemp profile image
benhemp in reply to PMRpro

Sorry for missing your question's intent. The reason for including venison (and bison) is that the carnivore diet believes the best meats to eat are ruminants (beef, lamb, goat, venison, bison) because they have four stomachs. It's believed that this longer digestive process removes toxins from the animal's diet so they don't wind up in the meat. All of that, to me, is conjecture, as are also assertions that are made that people evolved to eat meat (I don't believe that). I didn't start this diet because I bought into any of the rationales for why it would help; my doing this is strictly because I wish to avoid (if possible) the negative side effects of our medical pharmacopia and I am seeing if this works (I am strictly clinical in my appraisal of whether it's worthwhile for me).

When I say negative side effects, for example, four years ago the dexa scan said that I had osteopenia in my hips; prednisone could possibly make that worse. My retinologist recently told me my eyes are remarkably free of any cataracts, so I was pleased to hear that my course of prednisone hadn't seemed to cause a problem that way. And I realize that cataract surgery happens to most people if they live long enough, and that cataract surgery has a very high level of success, so I can live with needing it if prednisone is warranted.

PMRpro profile image
PMRproAmbassador in reply to benhemp

Strangely - this and last weeks meat is well marbled rump steak and venison steak!

I have just started to get cataracts, don't affect my vision yet, I'm over 70 and been on pred for 14 years. No sign of osteoporosis or diabetes either ...

Blackeye-susan profile image
Blackeye-susan in reply to benhemp

Thank you for your comment. I stayed on the carnivore diet for about 4 months and slowly started adding back in low carb vegetables and a few fruits. I was doing fine until I had to have a colonoscopy and that intestinal cleansing, they make you do, sent my immune system reeling. Soon after, I was stiff and down a few pegs in ability from a few weeks ago. I went to the rheumatologist yesterday and he told me that it is not unusual for that to happen after a colonoscopy, he seemed irritated at the gastroenterologist for apparently not providing guidance to me to prevent that upset to my system. He has had me up my prednisone, took x-rays of my hip -backbone joint and thinks that I may have psoriatic arthritis too as I had pretty significant psoriasis on my hands before the methotrexate. I decided that I will be going back strict on the carnivore diet. I am glad that you noted success on carnivore as I first tried the lion's diet and had success and then migrated to carnivore. The lion's diet is so restrictive as no fish, poultry or eggs and cheese. I really did not mind the carnivore, as all of these are acceptable, but I grow a substantial garden and the fresh veggies were calling my name. I ate them to silence them. 😋 Now they are silent, and I will go back to carnivore full force. 😊

benhemp profile image
benhemp in reply to Blackeye-susan

I understand the call of the fresh veggies! My wife and I had three large vegetable gardens this summer that produced more than we can use (we pass fresh veggies on to our children and friends). Now I can't eat the produce, and it's more than my wife will consume. Oh well! She says we might as well stop gardening. But I hope by next summer my diet includes a number of veggies again.

Singr profile image
Singr

hi there, sorry to hear you are having a difficult time of it. I’m not medically or nutritionally qualified. But what I do know from my own PMR experience is that when I do Keto (high protein, low carb) I feel so much better. My pain is lessened, the bloating reduced, the fatigue lessened and my mental health improves. When on Keto my back pain disappears but when off it the pain returns almost immediately. So there must be something in that. I lost 4 stones in weight and felt so much better. I’ve lapsed a bit and put 1 stone back on and I’m feeling pretty bad at the moment. Realising I need to get my rear in gear and get back on it. While I don’t think it’s an alternative, high protein and low carb most certainly helps me. Good luck in your journey.

Painblame profile image
Painblame in reply to Singr

Thank you, that gives me encouragement to give a keto diet a go which isn't quite as full on as the carnivore diet😀

artfingers profile image
artfingers

I'm surprised. I've had many surgeries while still on pred, the most recent being back to back knee replacement surgeries (first at I think it was 10 pred and second was I think 9 pred). Yes, they always top you up during surgery with a high dose of pred (by another name) to prevent adrenal crisis. My healing, I was told by my surgeon, was even faster than those without PMR. I agree you should discuss this with your surgeon, your dr and your anesthesiologist. I even upped my pred a little bit right after surgery for just a few days... no issues. Good luck.

G-Jo profile image
G-Jo

Regarding diet: what we all are looking for is an anti-inflammation diet. There are many lists online of inflammatory foods and anti-inflammatory foods. Be very careful of the source of your information; you want reliable scientific studies, backed up by repeated confirmation by other labs, and done by those with no previous bias or anything to gain (such as selling pills, potions, or receiving a kick-back from industry for promoting their product). Double-blind, case- controlled studies of large populations, not just one or two people's anecdotal stories. There will always be outliers -- people who drank whiskey every day and lived to be 100 or smoked cigarettes for 50 years and avoided lung cancer -- but those outliers are very rare genetic exceptions. Most of us are not outliers, we fall somewhere in the large bell curve, and what works for the majority will probably work for us too. That said, I would like to refer you to some sources I believe to be truthful and scientific: Dr. Michael Greger's website NutritionFacts.org, Ocean and John Robbins (Food Revolution Network), Dr. Neil Barnard, Dr. Dean Ornish, Dr. T. Colin Campbell, Dr. Joel Fuhrman, Drs. Dean and Ayesha Sherzai, and nutritionists like Brenda Davis (Canadian). Here is a very short list I keep on my fridge of anti-inflammatory foods: berries of all kinds, curcumin spice (Turmeric), leafy green vegetables, Ginger, all citrus, soy beans and other legumes, nuts (especially walnuts), and green tea. Foods with fiber feed your all-important microbiome, and 70% of your immune system resides right next to your intestinal microbiome, and communicates with it constantly. You want anti-inflammatory foods to supplement, not replace, your meds, and you want foods that will not harm your blood vessels, heart, kidneys, brain, or promote cancer growth in the long run. We are seeking a win-win: foods that help calm inflammation while doing no harm to any other bodily system. An anti-inflammatory diet should be a lifestyle, one that promotes overall health, and is sustainable for life. I wish you the very best as you journey towards health and wellness.

You may also like...

PMR - Diet and Exercise

about is PMR and exercise. I was reasonably fit and a walker before my major surgery. Then the PMR...

The Mediterranean Diet

Hello: I'm new to this forum and I've had PMR for almost 3 years. I posted this information to a...

New to PMR GCA - Looking for diet-related treatment

normal labs, through stress reduction and diet (starting with an elimination diet that ended with a...

Autoimmune Diets - AIP, Wahls

don’t as yet. The prednisone has really helped the pain and fatigue and cutting back from full time...

Impact of a Mediterranean Diet

news, that might be useful to some of you. I'm 4.5 years into PMR and am currently taking 1.5mg...