As I have posted previously, on 21/08 at the behest of my Dr I started Hydrocortisone and reduced my Pred down to 7mg. (I note from my original post back then I write, I am not full of energy even on 8mg...just plodding along. )
I felt good for a couple of weeks and dropped the Pred again. By 7th Sept I'd dropped to 5mg Pred and still felt okay.
On 02/10 we travelled for a week in Normandy and I realise in retrospect I was struggling. Each day took until mid afternoon to feel awake. (I didn't connect this to my large reduction in Pred (even though the Dr had told me a few weeks before it was too much too soon).
As I have previously posted, I have continued to feel less well and reached a crisis 3 weeks ago with unrelenting pain and low energy but couldn't see the Dr as he was on holiday. I rejigged my meds and upped my Pred to 6mg and kicked 10mg Hydrocortisone.
Finally saw my Dr last Monday and upped my Pred to 7mg, kicking another 10mg of Hydrocortisone.
Today I am in crisis again. Much pain, hands, feet and shoulders. Fatigued walking 500 metres.
Folding washing was a task, lifting my arms was reminiscent of original PMR issues. I end up feeling tearful and angry at the backward steps I have taken over the last 3 months. I am taking stronger analgesia more often than I was.
My rheumy appt isn't until the end of January. I can't bear the thought of feeling like this until then.
I have decided (with Mark) to go back to 8mg of Pred. I may even leave the last of the Hydrocortisone in for now. I really want to feel well again and definitely want to feel well for our big trip in May.
To cheer me up and maybe you too I am sharing my latest pastel of Brighton beach at night from a photo taken by my friend. I am really pleased with it.
Thanks for listening.
I think you have every right to be pleased with it!
Dropping 10mg hydrocortisone was a lot more than increasing your pred by 1mg - no wonder you feel ropey. 10mg HC is 2.5mg pred.