She thinks it’s the steroids making me like I am, and is going to ask my rheumatologist to get me off them asap, also she’s going to ask him I can have a test for my Adrenal Glands as well.
She said how long is it since you saw him I said a year, not happy about that.
I tried to tell her you can not come off steroids quickly, “oh she said you can”
Even OH bless him said I know you have to wean yourself off them, look what’s happened with my eyes because a moron knew best at the eye clinic.
I came away thinking what a waste of time 😒😒
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Blackcat1M
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The doctor I saw is a partner there, and she was a bit harrased as her patient before me needed an ambulance , and when it came she was broken off twice as they needed her to print out the lady’s notes etc.
I will wait and see what my rheumatologist says,as it is a year since I last saw him.
Surely if your GP writes to your Rheumatologist and suggests you come off steroids, that will go down like a lead balloon? Adrenal glands test sounds like a good idea though. Can you write to your Rheumy with your concerns? I'm sure he/she would be very interested to hear that you can apparently just come off steroids quickly!! According your GP. Good luck.
I think writing to your Rheumatologist is a good idea. I did that and then took a copy of the letter to the appointment and he was all ready with his answers. It allowed me to express my concerns and explain things much better than in a hurried hospital environment. He is a good Rheumatologist though and was very happy to address all my concerns and wrote to my GP with his instructions following our consultation praising me for having written to him. I know I am lucky with a good Rheumatologist but it might help you too.
I'm in agreement with S4andy. Since all the problems associated with getting GP appts, my husband and I always write a brief summary of what we want to talk about, before seeing the doctor. They seem very happy that it puts them in the picture right away and writing things down means that you don't forget things in the rush of an appt. It certainly saves time. Both patient and GP benefit.
I would advise that you write to the Practice Manager to say that you are very concerned with the medical advice you have been given which is contrary to everything you have read and contrary to the Rheumy that you are under. The PM will have to discuss your letter with the lead partner, who will see the error in the advice. Is yours a training practice? It could be you saw a new registra who isn't experienced in steroids! I being kind here - but this is very serious and shouldn't go without comment - for yourself, and for other patients that she may see.
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long awaited rheumy appointment 
Posted last week for advice. Rheumy nurse's opinion on GCA symptoms - go on - you know you need a laugh.
confused by rheumatologist 
Not sure what to do!!
