I had a first appt last week with a different rheumy from my first PMR episode of 3 1/2 years. She greeted me wit 'why have you been sent to me instead of X ? Why are you here. I replied that I had a recurrence of PMR. Well she nearly fell off her chair laughing, and informed me that to get it twice was sooo rare , it really never happened etc. I said that PMR pain was a very particular pain not like any other and definitively recognisable, so she muttered mis diagnosis. I then mentioned that I was worried about GCA, having probably had it last time. I had a very sensitive hairline on the left and the top of my head plus a stiff and uncomfortable right jaw. She did feel my jaw, but said there was NEVER pain in the jaw, nor stiffness, sometimes I find it difficult to open my mouth and can't bite.
I thought this might amuse you. Luckily I know a bit and can stand up for myself, and my GP was horrified when I told him. Oh , and Stephen Trotter in his book says 50% of patients with GCA have jaw or tongue claudication.
I had the greatest difficulty in keeping my rag and nearly lost it, she talked down everything I was doing, diet, supplements etc. I am to see her in 6 weeks when I am to be off steroids, and she will give me a diagnosis after lots of X Ray's .!!! I am after all 84 and according to her everything is wearing out.
I think I might just get a referral to another consutant, I am told Dr,Hughes in Chertsey is knowledgeable.
This is such a wonderful support group, it is the first I read in the day. I wish everyone a healthier and pain free 2017