dizziness: Does anyone else suffer from dizziness... - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

dizziness

Maggiechris profile image
6 Replies

Does anyone else suffer from dizziness as a side effect of taking prednisolone? Prior to being diagnosed with PMR last year I'd had labyrinthitis for a few months, but the associated dizziness was waning. When I started taking pred the dizziness worsened and I've had it ever since, some days better than others. It did seem to improve as I reduced the pred but I've recently had to up my dose of pred after trying to stick it out on 3mg but felt so poorly I couldn't cope. The dizziness is now worse again.

Written by
Maggiechris profile image
Maggiechris
To view profiles and participate in discussions please or .
Read more about...
6 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

It is listed a a common side effect in the patient information leaflet, but as you encountered it does usually get better as you reduce.

Now I would say it may be down to adrenal stuttering, it is a side effect of them struggling - see link - or maybe a combination of both -

healthunlocked.com/pmrgcauk...

A slower taper and smaller steps (0.5mg) if not already will help adrenals. A couple of slower tapers can be found here -

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

piglette profile image
piglette

I got bad dizziness when my adrenals started to wake up around 5mg. I also started to faint along with the deathly fatigue

Theziggy profile image
Theziggy in reply to piglette

Goodness, how are you now Piglette?

piglette profile image
piglette in reply to Theziggy

I went through numerous tests for my heart. I am not sure they seem to have come to a conclusion. No one mentioned adrenal problems! I do seem to have improved with the deathly fatigue having improved too.

Sho-Sho profile image
Sho-Sho

I am on 5mg of prednisolone now having started at 70 for GCA 6 years ago, the dizziness was terrible until I got to 10 then it went away but back it came again at 7mg, be it nothing like as bad - my adrenals are only functioning at a very low level & this is definitely a side effect from that.

Not very pleasant.

GrandmaPirate profile image
GrandmaPirate

I had also several periods of benign paroxysmal positional vertigo while on prednisolone 1 mg/day (and earlier higher doses). My last one lasted from July until mid September, when it within a week became less and stopped completely. That whole period I was on 1mg/day pred. The only medication change was a disruption of one month of DHEA 4mg/day in August. I resumed the intake in September. Dizziness is in my case especially when coming out of bed, while doing my sit-ups (exercises) or putting on/off my shoes. Nausea often occurs at the same time. During the summer months I m cycling a lot and I wonder if it has to do with the position of my head on the bicycle. In September it started raining and I stopped cycling.t's puzzling. Just glad it is now over again, because severe vertigo isn't pleasant and makes you feel unsafe.

You may also like...

Dizziness

I have felt dizzy all the time from when I started on 60mg of Prednisolone 10 months ago and still...

Dizziness

Anyone else experienced dizzy spells on 60mg preds. Today has been particularly bad with pounding...

Dizziness

I have had GCA sine March 2016 and have had 3 flares. Currently on 10mg Prednisolone. I have been...

Dizziness

tapered gradually from 20mg to 3mg over 15 months but started having dizzy spells which begin with...

Dizziness

Hello fellow sufferers, Just wondering if anyone else has encountered this. I'm experiencing...