flares: I know there are a lot of posts on this but... - PMRGCAuk

PMRGCAuk

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flares

Bagadash profile image
6 Replies

I know there are a lot of posts on this but can’t seem to find them. Am experiencing a stress induced flare at the moment and having waited 2 days for a nurse to get back to me with some advice and in pain I have decided to do something myself. Got down successfully to 1mg prior to stress which is gone now so just need to read some advice.

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Bagadash profile image
Bagadash
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6 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Try this for starters -

healthunlocked.com/pmrgcauk...

If you’re still not sure after reading, please come back.

PMRpro profile image
PMRproAmbassador

Look at the Related Posts - to the right on a computer, not sure where on a phone. There are 10 listed there with the title Flare - and as you look at them you will find further links in the Related Posts to them.

Bagadash profile image
Bagadash in reply toPMRpro

This is a reply to Dorset Lady and PMRpro. Thank you both for your help.

This is an update for you. I put in a call to the rheumatology nurses for help re increasing dose of pred but having waited 2 and a half days and hearing nothing decided to up the dose myself. I was surprised and pleased to get a call from my rheumatology consultant on the 3rd day who discussed my case and recommended a plan for me to follow. Now waiting for new dose to kick in. Much happier.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBagadash

Thanks for update -can I ask what your Rheumy has suggested….:

Bagadash profile image
Bagadash in reply toDorsetLady

certainly. 5mg for 2 weeks, 4mg for 2 weeks, 3mg. For 2 weeks, 2ng for 2 weeks then back to 1mg. TBH this is much more than I would have done and I feel so much better after just one dose of 5mg although not back to normal yet.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBagadash

Being very conservative-but hopefully that means you don’t have any problems -hope so…

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