After about 18 years or so with PMR it looks as though i am finally away from it.......
My only success was tapering at a quarter Mg per month on a system similar to DSNS...
Now i am left with inoperative Adrenal glands (so i am told )......from the long term pred use.......
After a pile of tests including checking for tumors, i am told i have to stay on pred (or HC )
for life.......because the Adrenal glands are never going to recover (maybe yay ,maybe nay )
Hydrocortisone just did not agree with me , so pred it is ..........
The endo bloke would like me to be under 6Mg....but at 7Mg it also helps my other aches and pains.
That is where i am staying at present..(i may lower the dose one day just to see what transpires....).
At 85 years old 7Mg will do me just fine if it helps me get through the day........
I try to stay on a sugar free diet (definately no biscuits and that sort of stuff )........
Carbs i do not worry about.......moderate exercise is a must......
My weigh is around 73 Kgs.......keeping to that is fine..........
Side effects from pred.........a bit of a weight problem before ditching processed sugars......
I do bruise easy and have to carry a box of Bandaids...........
And of corse the Adrenal bit...........
I feel crappy a bit at times but just roll with the punches.......same as before, if a bit crook just
up the pred a bit for a few days...
I do have a Medical Alert pendant for critical info hanging around my neck .......
and a Blue card in my wallet that states i have Adrenal Insufficiency...............
Also a sheet of sliding scales of Pred (or HC )..for any injuries or what ever........
Yeah.....thats about it for the present....i guess time will tell.........
.............Billy................