Prednislone Dosage Advice: I have been on... - PMRGCAuk

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Prednislone Dosage Advice

craighead72 profile image
12 Replies

I have been on prednisolone for 6 months. Gradual reduction from 15mg to 12mg since June but symptoms worse again. GP a bit reluctantly agreed I could go up to 15mg from 2 weeks ago - still no clear improvement. Should I go to 16 or 17mg to see if that helps. Very confused as to how much you can adjust your dosage within reason as it takes 2 weeks to get a telephone appointment with the GP

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craighead72 profile image
craighead72
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12 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Do your surgery have eConsult facility if not sure check here- patients.econsult.health/?_...

They have to reply within a shorter timescale.

You probably do need a slightly higher dose, but you do need to discuss with GP unless they have already said you can alter your meds -but doesn’t sound like it.

Usual advise for a flare is contained here -

healthunlocked.com/pmrgcauk...

Have a read through see if it makes sense, then you could try nhs111 as it’s the weekend. That way you can tell GP on Monday you have received medical advice.

PMRpro profile image
PMRproAmbassador

I would be holding out for a referral to a rheumatologist - after 6 months and unable to get lower than 15mg there may be something else going on, You may have to wait ages for an appointment so the earlier you start the better.

No wonder the EDs are overrun - it just isn't on to make patients wait so long. Here it is the old-fashioned concept of turn up and wait, You see the doctor the same day and it puts off the malingerers!

piglette profile image
piglette in reply toPMRpro

Someone from Ukraine said that they can get things done faster in Ukraine than with the NHS. They could not believe it.

PMRpro profile image
PMRproAmbassador in reply topiglette

Have you seen the awful story in the Guardian about the little girl who died of sepsis last year because of arrogance on the part of consultants who couldn't recognise sepsis? It could happen in any country, any hospital - but don;t tell me the NHS is untouchably great ...

And under this next lot - heaven help us ...

Temeraire profile image
Temeraire in reply toPMRpro

I read that story - absolutely horrific. Upset me no end. Poor family.

Nextoneplease profile image
Nextoneplease in reply toTemeraire

I saw it too. Absolutely awful 😢 and the poor mother is still thinking she should / could have done things differently….☹️

piglette profile image
piglette in reply toPMRpro

There is a lot about sepsis cock ups recently, ever since Nic Grundy died of sepsis in the Archers people at least have become more aware.

PMRpro profile image
PMRproAmbassador in reply topiglette

You are probably safer if you get ill at home and a paramedic sees you! Though they still hand you over to a hospital consultant. She might not have died if she'd stayed in N Wales

piglette profile image
piglette in reply toPMRpro

The trouble is there is so much arrogance in some hospitals and teamwork is non existent. In fact I think it is one reason the NHS is in such a mess, some over inflated egos.

Beauf58 profile image
Beauf58 in reply toPMRpro

The same happened to my Dad 9 years ago. It took me 6 years for the hospital to grudgingly acknowledge they were at fault. Sepsis awareness and the pathway to treat is part of all nurses mandatory training, unnecessary deaths should not happen.

Suffererc profile image
Suffererc in reply toPMRpro

Don’t the GPs feel guilty peeps going to A&E/walk in surgeries. The waiting rooms are empty except for the one patient. So what are they doing. Some folks just not bothering anymore and just Googling

PMRpro profile image
PMRproAmbassador in reply toSuffererc

Not about the walk-in surgeries. If you suggest you will go to the ED they sometimes respond - but that all too often happens when push comes to shove and you need 999.

Dunno - they claim to be rushed off their feet ...

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