I have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad since i.e.usual pain and stiffness at onset of PMR. To top it all last week was told I am not able to drive again because my eyesight has declined so much since last Dec. (Hasten to add I do have Dry Macular Degeneration but this was well controlled until I had to go on steroids).
Advice would be very much appreciatedwhether I should increase steroids.
Written by
Esmeruth7
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..but honestly if you’ve felt unwell for a few weeks you really shouldn’t have attempted a reduction on 1 Sept….
…once you get things back under control with extra Pred then reduce to 7mg, NOT 6mg, and maybe try 0,5mg reductions p in future, you are getting into the realms of your adrenals needing to reawaken, and that’s sometimes difficult, so the slower tapers the better.
Good luck with your tapering and thank you, Dorsetlady for your reply. I am also on a 1mg per month reduction but struggle below 7mg . I have been on 6 for a few weeks but the neck and more recently the groin stiffness is back. I've been exerting myself too - probably overdone it with camping and (minor) hiking trips. I don't want to accept that being over 70 should make me sensible but maybe I should take heed of the advice I've read on here and go slower now I've got PMR. Grrrrr!!!!
And don't forget you aren't heading relentlessly to zero - you are looking for the lowest effective dose for YOU. Not the same thing at all. It doesn't mean you won't get lower - just not yet ...
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GCA flare, or not?
Flare or not ?
Flare!
So it's not PMR ??
Advice with flare up?
