recovering from covid and upping steroids

[Rosshigh]

Just recovering from covid this week after coming off a cruise ship!!

GP suggesting upping to 15mg from 3mg. See him again in 2 weeks but know others have suggested increasing by 5mg.

Just want to know what everyone's thoughts are.

[DorsetLady PMRGCAuk volunteer]

Have replied to your PM…replicated here -

Sorry to hear about covid -but you don’t need to go back up to 15mg -As you say usual recommendation is to add 5mg to last dose you felt okay -so to around 8mg -this link explains it-

healthunlocked.com/pmrgcauk...

But it may just be a reaction to to covid not a full blown flare -so a small increase may do the job -certainly don’t need 15mg.

Let us know how you get on please

[Rosshigh in reply to DorsetLady]

Thanks DorsetLady that's what I felt. Sorry still not good at navigating website.Will take 8 mg tomorrow and see how it feels. Thanks for your help again 😘

[Rosshigh in reply to Rosshigh]

Sorry don't seem to be able to open link.

[DorsetLady PMRGCAuk volunteer in reply to Rosshigh]

Try again - healthunlocked.com/pmrgcauk...

[Rosshigh in reply to Rosshigh]

Thanks managed to open it. As I said not very good with it all xx

[PMRpro Ambassador]

Was he suggesting it for Sick Day Rules or are you seeming to be in a flare?

[Rosshigh in reply to PMRpro]

He suggests it's a flare

[PMRpro Ambassador in reply to Rosshigh]

Covid doesn't go away in days - on the other hand, if the pred helps ....

[Rosshigh in reply to PMRpro]

Will try 8mg and see if it helps. I am now negative but still struggling with pain.

[PMRpro Ambassador in reply to Rosshigh]

This might be a proper flare - and you might need more. Only one way to find out.

[Rosshigh in reply to PMRpro]

Thanks for that. Will see how it goes and decide xx

[2013mayo]

Hi Rosshigh, Interesting that you got covid on a cruise ship, I did too, over 600 people got it on the cruise having to isolate at various locations in USA.

I didn’t up my pred though, it took a lot out of me, I was quite poorly for a good 3 weeks.

Hope you feel better soon.

[Rosshigh in reply to 2013mayo]

Thanks Mayo treatment on ship was awful. Locked up in a cabin on my own for 8 days and not allowed out!! Not even allowed to leave the ship with hubby at the end. Never again. Have had pmr pain since I came home so gp decided to up steroids temporarily.Hope to be back to normal dosage soon though. No taste and exhausted.

[2013mayo in reply to Rosshigh]

Hi, Same here, we were both locked in our cabin, my husband for a week and then me for 4 days missing various ports, we then had to isolate in a hotel in Long Beach for 5 more days, not allowed out of our rooms.

I was so glad to get home eventually even though I still felt poorly with covid.

Take care.

[Rosshigh in reply to 2013mayo]

Yes horrible experience. Hubby never tested positive so he was left to enjoy ports on his own in original cabin. Won't be doing it again that's for sure 🙄

[Amkoffee]

R U having problems getting enough oxygen? Covid causes inflammation especially in the lungs. If this is the case and the reason for the doctor ordering a higher dose like 15mg or even more would be appropriate. However if it's just to deal with a PMR flare then I would agree with the other's comments.

[Rosshigh in reply to Amkoffee]

Thanks. Just pmr caused by covid as lungs OK so just upped it by 5mg.

[Ozziedays]

I had Covid last month and the only change to my pred was to delay my next 0.5mg taper by a couple of weeks. I was prescribed the Covid antiviral molnupiravir (Lagevrio) for 5 days, not sure if that’s relevant or not.