Not sure what’s going on with me. Prednisolon not helping this time 🥲
Begging to think much more going on this time round. Last time when on pred felt I could pedal to moon and back.
This time feels as I have done
Get lots of finger and feet cramps
Fussy head. Never been to rummy.
Anyone feel same ?
Hi Ronzy,I remember your first posts, I’ve come and gone here a couple times. You were always off somewhere having an adventure. I have never been off prednisone, just 6 years of steady going but still feeling a lot older now, life is just not as much fun as before this stinky pandemic. Anyway, hope you start feeling better soon, one day at a time. Best to you!
I relapsed aft 9 yrs and this time is totally different I get good days and bad.Ive had so many flares my body will not let me get past 10mg.This disease can really knock the wind out of us.I hope you feel better soon and don't give up hope.
Hi Ronzy, I was diagnosed with PMR 10 weeks ago, GP put me straight on to 20mg Pred per day and I thought I was cured !! all aches and pains went overnight. 2 weeks ago GP reduced me to 15mg per day and I now have exactly the symptoms you describe in feet and hands every morning. I thought it might be a separate issue but now that I have read your post I will take it up with my GP to see if he has reduced the Pred too soon.
Not too soon - too big a jump down. Would have been better via 17.5mg and some people can't manage even that and need to go 1mg at a time
Thank you, I managed to talk to my GP yesterday afternoon and explained my "new" symptoms, he has arranged for me to have further blood tests next week so I will ask him about 17.5mg when he rings with results.
Its exhausting even trying to work it out. My legs are very bad and last couple of days hands and arms joined in despite increasing my pred. I dont know whats going on. So i know what you mean.
Planned trip next week - so anxious!
Busy week ahead, should I increase my dosage slightly
1 week since diagnosis of PMR
