Vasculitis

[Westley]

I have vasculitis ANCA and even when in remission have really chronic fatigue, is there anyone else that suffers with this while in remission? I thought it would stop while in remission but it hasn't

[PMRpro Ambassador]

What do you mean by remission? Remission while on medication or remission when not on any drugs?

[Westley in reply to PMRpro]

Remission while on 25ml injections of methotrexate

[PMRpro Ambassador in reply to Westley]

Which almost certainly means that the symptoms are under control - but the actual underlying autoimmune condition that causes those symptoms is very likely still chugging along in the background attacking the body, almost like flu. Fatigue is an inherent part of all autoimmune disease - and it only goes away once the a/i disorder is burned out and gone, not in drug-induced remission. And MTX can cause severe fatigue too - I had to stop it because of the fatigue because I simply couldn't function.

[Westley in reply to PMRpro]

Thank you VERY much for replying and your reply has helped me understand. I have found the Fatigue and pains have never eased and l was worried because l couldn't understand why this was and l can understand now