Good Endo Visit

[winfong]

Just got back from a visit with my 8th specialist, an endocrinologist. My rheumy had referred me there as I seemed to be getting adrenal insufficiency during tapering. I like my rheumy, but he has some of the common limitations I hear in this forum - markers over symptoms, too fast tapering schedules, rigid adherence to said schedules ...

The endo was great. She seemed to "get it" - super slow tapering, listening to symptoms, everyone's different, patient control over dosage (including upping when necessary) ... a lot of things I've been hearing here, but not so much from the medical community to date. Will actually be getting together with her every month, so am looking feeling pretty good about things.

[cycli]

Good to finally get someone who understands. It still surprises me that so called specialists are still trying to force us onto unsafe doses or even refusing to accept the patients side of things. Some really think they are in a better position to dictate to the patient rather than listen and react accordingly.

[LemonZest11]

That is great news, good for you! 👍

[Viv54]

Good for you , i am still waiting for my Endo app, i have faith that they will be able to help. Im convinced i have adrenal insufficiency. My Rhumey sounds so similar, She is pleasent enough but just sticks to her plan ! I can not wait to get help from an Endo.Good luck , let us know how you get on.May give us all some hope .

[Sophiestree]

Funny, I have had two Endo phone appts and they seem so different in terms of listening and 'getting' it. Apparently I'm now down for surgery for removal of my rt lower parathyroid gland 😱 but they need to check the LVV inflammation. Possibly another PET scan? The only thing I find with Endo is the very long wait. My scans were in January and just speaking to a surgeon might be another 2/3 months so guess surgery won't be this year! Although Dr. Google is scaring the bejeezus out of me for errors on that front.

[Uglow]

Dr Google is always terrifying me 😂

[jinasc in reply to Uglow]

Why look at it then?

[SheffieldJane]

My Endocrinologist was good at all this too. I think it suits their background.