PMR: Just want to at what a brilliant site, with... - PMRGCAuk

PMRGCAuk

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PMR

Ann1A profile image
20 Replies

Just want to at what a brilliant site, with fantastic people giving support, this is. I come on here and read to inform myself, I come on here for help when I'm bad and I thought I should come on here and be thankful too. THANKYOU ALL.

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Ann1A profile image
Ann1A
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20 Replies
Seacat30 profile image
Seacat30

100% and everyone is so kind as well as knowledgeable. Thank you all xxx

123-go profile image
123-go in reply toSeacat30

It's kind of like a big club (that no one really wanted to join 😏) and having each other is a gift. We are so fortunate.

123-go profile image
123-go

What lovely comments! 🙂

SheffieldJane profile image
SheffieldJane

Lovely! 🌺

jinasc profile image
jinasc

I will 🍻 to that 😊

Constance13 profile image
Constance13 in reply tojinasc

With BEER??

PMRpro profile image
PMRproAmbassador in reply toConstance13

Why not?

jinasc profile image
jinasc in reply toConstance13

Yup, was always a beer drinker, especially when it is hot. Brought up on Newcastle Brown Ale (Journey into Space name in NE.) - only beer at one time sold in House of Commons. Northern MPs insisted.

Constance13 profile image
Constance13 in reply tojinasc

Sorry - my mistake!🙃 Thought your tipple was brandy!🤪

Oh - Newcastle Brown - haven't drunk that for years. Did order it quite often when we were in the Cotswolds though.

jinasc profile image
jinasc in reply toConstance13

Brandy for medicinal purposes, developed as a medicine by Medieval Monks in France. Great painkiller.

Beer for pure pleasure - neighbours came and took me to their gardenlast Sunday afternoon - very hot (29c). Under an umbrella so needed hydration therefore three glasses of a new craft beer - delicious.

HeronNS profile image
HeronNS in reply tojinasc

While you're on here ... did you know that Flexiseq has come out with a medicated version? CBD!

jinasc profile image
jinasc in reply toHeronNS

No Heron I did not - just had 4 packs delivered so when they run out might give it a try.

Will check if available in UK.

Ta muchly.......

BTW did you try it and does it help you?

HeronNS profile image
HeronNS in reply tojinasc

I found out because I mentioned Flexiseq to a friend and she was interested so I looked up the link and sent it to her. No I haven't tried it, and my son gave me a huge amount of the OA strength for my birthday so won't need any more until Christmas. I don't think I need it at the mo but something to keep in mind if there's more deterioration in future. The buy now link only ever leads me to Amazon, so I don't know if you can purchase over the counter in the UK. CBD should be available everywhere as it doesn't make us high, but I guess the powers that be remain suspicious of hemp!

HeronNS profile image
HeronNS in reply tojinasc

Actually, I've just looked at the website again, and strangely enough, the CBD appears to be an oral product, not a topical application. I could have sworn that two days ago I was looking at a tube of CBD-containing gel. My bad, I guess. I was just entering reaction to my Shingrix shot so maybe massive brain fog!

jinasc profile image
jinasc in reply toHeronNS

No worry Heron, but the flexiseq is just to go between the bones - sort of helping whatever cartilage is still there or replace for a while. I would give it a go and see if your pain lessons. It is not a cure - just helps and as it is not a drug, it does no damage.

Thank you so much for being a human being, who makes errors with 'brain fog'. 😘

HeronNS profile image
HeronNS in reply tojinasc

Oh I know. Thanks to your advice I'm walking pretty much normally again! However I wouldn't take CBD orally. I thought as an addition to the gel it could be helpful to some. I've just written to Flexiseq asking if they're considering adding such a product to their line. So far my friend has already ordered extra strength Flexiseq for arthritis, and my son, a runner who uses a medicated rub, is going to try switching to the lighter version to prevent wear and tear. I think I am a good ambassador for the company. :)

jinasc profile image
jinasc in reply toHeronNS

Heron

It was Arthritis UK Research who developed Flexiseq with a German Pharmaceutical Company. It might just pay off taking a look at versusarthritis.org/about-a...

I joined Arthritis UK at the time I developed GCA, they were the only people who had anything to say about it at that time. Dasgupta worked closely or with Arc and wanted them to run a section - they just could not do it - so he embarked on his dream. If you want to read his story, written by him for our newsletter - then send me a PM. xx

HeronNS profile image
HeronNS in reply tojinasc

Oddly enough I can't do anything with the Versus Arthritis site. Because I'm outside the UK? I tried googling to get a different link, but same issue. But I don't suppose they say anything I wouldn't have access to through Canadian sites?

jinasc profile image
jinasc in reply toHeronNS

Heron, tis funny because I met Ragnar on the Canadian Arthritis site.

Have you tried this one..............arthritis.org/

and you could try this link: arthritis.org/science

Going off for some tea and a bit of Yorkshire Brack.............

HeronNS profile image
HeronNS in reply tojinasc

I've seen that. It's the American site. Here are two Canadian ones:

arthritisresearch.ca/

arthritis.ca/

But of course if you go to your doctor all they tell you is to take painkillers, keep moving and eventually prepare for surgery!

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