Scleroderma joint pain : This past week I've had... - PMRGCAuk

PMRGCAuk

20,342 members • 38,113 posts

Scleroderma joint pain

forevermu profile image
forevermu
•9 Replies

This past week I've had excruciating pain from the top of my leg down to my ankle in my left leg . Sometimes I have pain in my butt cheek 🙃 and it then travels painfully down my leg . The pain seems to start eveytime I walk and I end up in so much pain . A young doctor in A&E said it was my knee which showed to have arthritis in when first diagnosed with schlerdoma I'm back today at my local doctors because the pain is constant and my quality of life has changed rapidly. Trouble is not all doctors are trained up enough on this immune disease which is a worry .

Googling severe joint pains in schlerdoma it does say this can be found and progress

Written by
forevermu profile image
forevermu
To view profiles and participate in discussions please or .
9 Replies
•
PMRpro profile image
PMRproAmbassador

Did you mean to post here - this is PMRGCAuk forum, polymyalgia rheumatica and giant cell arteritis. I don;t think I know anyone here with scleroderma.

forevermu profile image
forevermu in reply to PMRpro

Oops sorry

Pris80 profile image
Pris80 in reply to forevermu

Sounds a lot like sciatica which I have had lately myself. Good luck.

HeronNS profile image
HeronNS in reply to forevermu

Are you trying to figure out what might be a diagnosis for what you are experiencing?

forevermu profile image
forevermu in reply to HeronNS

Was hoping to see if anyone with scleroderma has these problems

baxternoni profile image
baxternoni

I have GCA, AS, & heart issues. I had a similar problem but with both legs and it turned out to be piriformis syndrome. I hope you find out what is wrong and get better.

JMTS profile image
JMTS

I was just reading your post and I had something very similar to you I was in so much pain 'I couldn't walkFirstly I went to the GP he really didn't have any answers - I went to a Physiotherapist and then a Myo Therapist for a few visits while I was being treated the pain went but after my appointments it came back with a vengeance I really know what you are going through - I was desperate went to my sons Chiropractor had two visits to him and he couldn't fix me and he suggested I have an MRI so back to the GP and got a referral for an MRI and guess what I had two cysts in my hip joint and he didn't have any answers for me. I came home and looked it up on the computer and they spoke about a hip replacement and I thought no way so I remember 20 years previous I had a spur in my foot and a Naturopath gave me some cream for it which I religiously rubbed in three times a day and believe it not that cream dissolved that spur and it has never grown back that it another complaint the GP didn't pick up. I rubbed the cream on the spot that was sore in my hip area three times when the pain started. no my pain I couldn't believe it I then got pain about a week or so later rubbed it in again and that was the last time two years ago. So I am convinced someone is looking after me. hope that I never have to go through that again Best of Luck

Summerrental profile image
Summerrental in reply to JMTS

What is the name of the cream you used?

forevermu profile image
forevermu

Wow thank you I went to my doctors yesterday one that hadn't read my files ? He said it was a nerve in the top of my leg stop co codemal increase my nortriptoline to 3 oh my god I've never felt so out of control of my own body 😅 I've been sick , stomach pains . Weird as they are obviously doing as they should opening up my blood vessels I knew the pain was in my leg but couldn't feel it , a friend said these were far too strong for . My normal use is one in the morning then one at night not all together ! What cream was it you used pleased as he took painkillers away I have none now.

You may also like...

Right sided 'joint' pain

such a thing exists, down to about 3 mg, when I developed soreness/pain in the joints of my right...

Sacroiliac joint pain

Sacroiliac joint pain So heres the deal, I have developed sacroiliac joint pain on Right side of...

Update on joint pain at 2.5mg

Hi All , I wrote last week about how my joint pain seemed to be getting worse especially in my...

Adrenal deficiency, muscle or joint pain

adrenal problems as I am down at 3,75 mg and have some issues with my body such as pain in my left...

GCA exhaustion and joint/muscle pain

I’m also experiencing joint pain in hips and knees and muscle pain in my legs which doesn’t help....