My Dad aged 79 has been suffering this awful condition/disease for four years now . Prior to this he was a very fit active 75year old always helpling others with jobs , taking my dogs for walks and helping my Mum with house chores . He spent 6 and half weeks in hospital and they found nothing .He didn’t get a diagnosis for 6 months but then his Gp started him on 20mg pred.which started to help , he now has neuropathy in his feet and legs which causes pain /stiffness and struggles to walk .fast forward 3 1/2 years on approximately 20 mg pred he eventually got down to 5mg at Christmas 2019 . Then he had a cold and chest infection which it caused his symptoms to worsen a great deal so back up to 20 mg with no effect up to 30 no effect . So reluctantly tried 50 mg pred a little better but coming down now at 30 mg but he feels dreadful with this DEADLY FATIGUE struggles to walk eat etc. Having a shower absolutely exhausts him. Last week he had a telephone consultation with his Rhemeatoligist and he said he would like him to try different medication SULFASALAZINE . Really quite scared about this . Any advice welcome .
Thank you