I wonder if others have had similar experiences or if this sounds familiar...
Or not.....
Yesterday I needed to se a GP to obtain my various medications and sat in the waiting room for half an hour. THAT itself does not bother me but while waiting one of the loud noisy music stations was on. Because I had no idea how long I had to wait I did not tell them to turn off the music, as I should have or asked them to give us some classical, gentle music instead of the “ noise”. When I finally got to the GP my heart was racing, my BP was up. It was as if I was totally unable to shield myself from the attack of the music!! Is this, what I might call “ hypersensitivity” typical for PMR??
It just felt there was no way I could get my parasympathetic Nervous system to help me.
I explained it to the GP who apologised and promised to take action so other don t have to go through the same “ attack” as me....great stuff for a health centre! It has taken me more than 24 hours to get myself back to some sort of equilibrium.
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Kaaswinkel72
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Hi kaaswinkel, I would say yes. Pmr and other conditions (like fibro) can cause noise hypersensitivity. This is part of the reason I HD to stop going to the cinema or concerts. But even in the company of my family who I live and enjoy can be hard. Especially when 3 kids and 3 dogs get together. And my bro who insists on playing music slightly too loud when conversations are happening. I ask him nicely to turn it down a little..... No..... By the end I either get upset or leave the room. They just think I am being dramatic but it scrambles my brain.... As does excessive movemt around me. And my startle reflex is hypersensitive. My dog has got use to me jumping when I turn and see her.
I love that word scrambled brain, thank you for your instant recognition and reply. The forum is what makes us able to manage this challenging condition.
You have my sympathy as I would hate to go to the GP's surgery and be subjected to loud music. It's bad enough that I'm expected to sit and watch Sky News when I go to the dentist. Even worse was the time when I had an appointment at the Whittington Hospital and had to endure an episode of Jeremy Kyle's programme in the very small waiting room. To me this has nothing to do with my recent health problems as I'm fortunate enough to be able to go to the cinema or concerts without problems. I've always hated intrusive music or broadcasts in all kinds of inappropriate circumstances - rock music in restaurants is another example. By the way it also bothers me that a large hospital like the Whittington must waste a huge amount of NHS money on having numerous televisions switched on throughout the day.
~Man alive - he's enough to send anyone over the edge listening to him & I would hazard a guess one does not need PMR + to think that either................
I have netflix and other things so only watch what I really like. Pottering and resting are great. If I ever get to watching Kyle I know it time for a trip to 🇨🇭. 😂🤣😂😕😉
Thanks for hr reply. Very interesting about when yr sound sensitivity gets worse you suspect you are heading for a flare! I wonder what you do when you feel a flare might be imminent?
People tapping... Tapping or noises in the car. Grrrrrrr
Actually... I think I am the same a few weeks ago I was a bit snippy with a friend who was tip tapping her nails on the hard plastic armrest in my car. I had to ask 3 times to stop as it was going through me. Extra pred... Laughed it off.
So please you have posted this , I thought I was on my own , I spend my time turning tv down and then OH turning it back up and the radio in the car , as for music in shops etc , I find I can’t stand being in A crowd , I hope you’re feeling better by now x
Yes, thank you feeling better again, but it is absolutely crazy one goes to a so called health centre and gets subjected to completely unnecessary stresses. I am glad the GP took it serious and will bring it up in their meeting!
I agree with all these points. It is a lovely morning. At 8.50 am a noise like stone cutting began. I guess we are in for another noisy summer. Sheffield is experiencing an influx from the South but they won’t leave our beautiful Victorian houses be.
As for the doctor’s surgery. The most senior doctor has Classic FM on the radio, in his waiting area. My little grandson from the age of 12 months, used to turn it off - nobody objected, least of all me.
Shudder.
I get out if the car for one walk and traffic whizzes past as its derestricted and my friend tries to chat to me.... It takes 5 mins of tranquil walking or sitting to calm down. tse2.mm.bing.net/th?id=OGC....
We only discovered belatedly that my daughter has Misophonia, which gave us terrible teenage problems: maybe the PMR makes us more sensitive if we’re susceptible: I do find I’m drained more easily by emotional situations and my first flare up was after a particularly emotional weekend? Love this forum 💖
I get very "bothered" by loud sounds - and that would have driven me out of the room I think. It is appalling to put such things on at a level that could disturb people. I dislike musak of any sort, even classical unless it is at a level it is possible to ignore.
Yes I think it has affected her relationships ( she’s happily single at the mo) and she finds open plan offices and eating out difficult : but that’s another thread ......
Totally agree about noise in surgeries...mine, we sit in lovely silence!...my sister's until recently had it blaring out very loudly....new manager has taken over and no music now, I don't u nderstand surgeries with music...people are ill!!
Like others on here, I don't do cinemas..loud restaurants etc, but sadly the world has got very noisy....
The music chosen in Health Centres drives me mad , at Cardio last week my OH noticed that the stereo being used to boom out the rancid bilge from Radio 1 was sat on a table in the corner. He didn't even ask , he got up like an absolute hero and walked over and switched it off. Three other patients looked up and smiled a grateful weak smile to him.
As my Chronic Conditions have a great deal to do with a lack of control in the Autonomic Nervous system response to stimuli both internal and external these things do matter and do affect our ability to regain control over our symptoms if we have Health issues that can affect the Nerves. As you say it can take a day to cope with an hour of overstimulation. If you are on higher doses of steroids you suffer more because your body cannot help correct the balance in itself to reduce the sympathetic nerve symptoms . When you hit Adrenal Recovery your body has the opposite problem and can't respond quickly to an attack on your nerves , the sympathetic system then jerks and overreacts , rolls up and down like a out of control rollercoaster , or underreacts sometimes reaching a peak or a trough and just comes to a dead stop , result agitation then burning fatigue.
I think it's worth us all complaining about Musaq ,not a Reception , but to the GP explaining about the " Bad Musaq" and how it adds to the Stress of a Surgery visit , reminding them , most importantly , of how it can make many of our routine checks inaccurate when we finally get in to be seen.
I have the same issues with crowds , noise from behind me , light and sound ( the combo of bad music and florescent lights in hospitals is a perfect storm ) , temperature or humidity and as I have Fibro , touch , and the sort of discomfort caused by hospital seating also makes a trip to the Surgery a cause for painkillers and a long rest with a comfy blanket.
That is absolutely terrible . I know if it happens again I will do what yr brave husband did, find the switch and switch the bl. Off, indeed without asking, great guy to assist you like that!!💪🏿
I'm going to do what you did and tell the GP about the one in the surgery next time , I've spoken to reception but it didn't make a difference and they have control of the button behind the screen!
It really is the worst thing to listen to when you have a perpetual headache , the only reason they get away with it is the people having to sit through the torture ( rather than just passing through to pick up a prescription ) are too sick to be able to complain about it. I always wonder wether they are selfish or stupid for not realising how inconsiderate it is . It wouldn't be so bad if it was quiet but it bellows out from speakers all the way around the room in my local surgeries.
The Doctors don't notice because they never spend any time in reception.
Our GP has a silent waiting room. The one who works with her in this village has gentle something or other on a speaker - I do prefer the silence. And there I suspec tit is an age thing, Claudia is 50-ish, Simone much younger. Maybe the answer is to have noise-cancelling headphones? But they can be weighty ...
Tbh its not the music I object to on r1 its the inane chatter. The music isn't up to much but at least if at 1 on dial I can't hear it. my nieces were in the car with me a couple of years ago and they turned the radio up for a song we all like. I almost crashed my then mini at the traffic lights. My head just couldn't cope with all the stimulation.
I do have the local rather awful music programme on - just for the traffic news!! In general though it is fairly inoffensive and when it isn't, knee jerk reaction with the volume button ...
I have to have R3 in the UK now for that reason - used ot be Classic FM but it has become awful and has no useable traffic news ... At least R3 has reduced the amount of avante garde rubbish ...
I had to phone our doctor's office a few weeks ago to make an appointment for my husband. I was on hold for about 15 minutes. Throughout the entire time "music" of a kind I completely abhor and would switch off instantly, was playing in my ear. I held it as far away as possible but of course had to know when my call had gone through. By the time I made it through the line-up I was a wreck. I told them at the other end how horrible it had been, and as my voice was shaking I'm sure they got an idea I meant it. Never had this happen before. I, too, felt like I was in some sort of shock or trauma.
We have the same problem in US waiting rooms- a TV loudly playing a program on home remodeling. It's good it's not politics otherwise we would have murders. Every time I get a survey from medical providers I complain about TVs in the waiting areas. I would prefer low soft music or nothing- perhaps reading m arterial.
Barking dogs in the neighborhood annoy me when too frequent. Twice I called a dog owner to please bring her dog inside.
I've always hated the above but on days I'm very tired it drives me nuts.
I am with you with barking dogs. I have a dog but if she barks it's straight in the house. Tbh she only barks outside if a stranger tries to get in the gate. She is now suffering from senile barking syndrome in the house and, yes, it drives you absolutely nuts!!!
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