Just saying hi.

[Plslsg123]

Hi my name is Sue. I am 59 yrs of age and have recently been diagnosed with osteoporosis. I am taking Letrozole as a 5 year treatment plan for the breast cancer i had in 2016. I am healthy really now and count my blessings, only trouble is I have got the osteoporosis I think through taking the Letrozole. I am starting Alendronic Acid tomorrow I am told for 5 years. Still got 2 and a half years left to take the Letrozole. Anyone like myself

[PMRpro Ambassador]

Welcome - nice to meet you, though did you mean to post here? We all have either PMR or GCA but we do have a few breast cancer ladies so they may be able to identify with you.

[jinasc]

Hi, I think you are on the wrong thread...............put Osteoporosis in the search box, top right hand corner and it will take you there.

I would also go to the Royal National Osteoporosis Society website and read up on the alternatives to AA. Just my opinion but there are better ones. If you are going to take AA get any work done on your teeth. Some Dentists will not do your teeth when you are taking AA.

[Yellowbluebell]

Hi, welcome to our forum but although some members do have osteoporosis on here we all have either pmr or gca or both. Our osteoporosis is usually caused by the taking of prednisolone. We also have a member or two who have had breast cancer but again they also have pmr and/or gca. You may find some of our threads useful still and you are quite welcome to stay around and join in where you feel you can. YBB

[Yellowbluebell]

Sorry we came at you all at once. We cant see the other's messages that till we have finished our own!!YBB

[Cairn]

Hi. I have GCA and PMR. I am taking Alendronic Acid to protect my bones from prednisolone. Haven’t found any problems with it except it is vital to remain upright 30 mins after taking it.

[Bluster]

Hi Sue (I am Sue as well!) I'm 65 yrs old. I was pescribed Alendronic Acid after a bone scan showed osteoporosis (I had 3 fractures from falls from standing over about 2 yrs). I lasted 5 weeks on AA and Calceos. I felt awful after the first dose of AA. I didn't actually go to bed but only just. I never felt that ill again though I felt as though I was "going down with something" for about 3 days after each weekly dose. I also had a pretty permanent low level headache which didn't seem to clear with Paracetomol at all. After the 4th dose, I had a huge (size of a 50p piece) blood blister in the back of my throat which took nearly 2 weeks to clear and was very uncomfortable (I was following the instructions on how to take the medication to the letter). Nevertheless, I persevered. After the 5th dose I got the most excruciating pain in the joint of my right wrist - I couldn't do anything - not even use a keyboard, for 24 hours. That was the final straw and I stopped taking it and the Calceos. The gp was fine with that. He has said to take a 6 week break and come back and try a different Bisphosphonate. I'm not keen, but he told me, although diet and exercise can arrest any further deterioration, I need medication to restore the bone to it's proper strength. I guess I have to trust him on that? He told me to start taking the Calceos again which I have done for about 12 days now but have stopped this again too as the headache has returned. I also have a horrible feeling in the back of my throat (dry and my tongue feels really thick) and my poo (sorry) is really light coloured. I was blaming the AA for that but maybe it's the Calceos? I will stay off it for a couple of weeks and then try again so I will know what to say when I go back to see the GP. I am feeling quite disheartened. I would still prefer to fix the problem with exercise and diet but I feel like I'm being irresponsible going against the gp's advice....

[PMRpro Ambassador in reply to Bluster]

I know this sounds crackers - but what colour is your urine?

[Plslsg123 in reply to PMRpro]

Ive only taken my firat one today so nor noricwd any difference as yet .

[PMRpro Ambassador in reply to Plslsg123]

If your poo stays pale and your urine gets darker, do pease tell your doctor asap.

[Bluster in reply to PMRpro]

I do look out for that as I have one HUGE gall stone ...but I think it's ok at the moment

[PMRpro Ambassador in reply to Bluster]

Hmmm - are you sure????

[Bluster in reply to PMRpro]

yes... I'm sure...

[Bluster in reply to Plslsg123]

Well that's hopeful, I would say - I took it at about 8am and felt really rough by lunchtime.

[Bluster]

I don't think that has changed - pretty normal clear pale yellow.....

[sandylo]

Hi i have been on all three cancer tablets arimidex for a year was in agony couldnt hold the kettle or pressure cooker and hardly move. Then switched to exemerstane wasnt much different then to letrozole which i have been on for 7 years now i am coming off them in september it will then be 10 years since my breast cancer. I am wriggled with joint pain. hair loss. trigger finger insomnia and numerous kidney infections and dizziness. Numbness in my hands in bed the list goes on. I used to be so outgoing single parent ran my own hairdressing salon. Im now 76 just about manage my gardens as always :hoovered: my lawns as i do them every 4 days as its easy that way with a hover mower. Im just hoping when i stop the tablets in 8 weeks time i will get a little bit of respite as i have had a lot of falls with my hips and knees.😦

[sandylo]

Comment above from sandylo