Brilliant to have this printed out - thank you so much. My question is at what point do you think I would go to the 1mg drops as described. I am currently on 17.5mg various hiccups along the line from 40mg in August. I was planning on sticking to this for four weeks. I have already obtained some 2mg tablets from the GP and have a pill cutter.
A question about DSNS reduction: Brilliant to have... - PMRGCAuk
As soon as you struggle with 2.5mg drops - and everyone is different. Originally I worked it out thinking it would be people below 10mg who needed it but then a lady had a flare because of being forced to reduce too far and too fast and having got things under control again at above 20mg - at the time thought to be a very high dose for PMR - couldn't reduce at all without major pain and stiffness. By using DSNS and 1mg drops she steadily reduced to below 10mg before getting stuck again.
You can do 5mg at a time when you have only been on pred for a few weeks and that is how most doctors are used to using pred. At the start I did 2 weeks each of 15/10/5 and stop with no trouble at all until 4 hours after missing the first 5mg dose when I seized up completely and went to bed in tears. I have never managed that again.
The basic rule is never more than 10% of the current dose but some are lucky and manage a bit more. At 15mg that is 1.5, by 10 it is 1mg - so why not start at 15mg?
Brilliant thank you - yes I did the reduction quite fast the first time when my diagnosis was supposed to be wrong! But now I am learning! I take comfort in what a great teacher (business teacher) said - was that most people need to hear/read/see things 6 or 7 times before they GET it - I think I am just about there now!