Hi fellow impatient patients and hello to those of us who have learned to become more Zen about this illness.
I have been lucky enough to get down to 3 mg Pred again ( for the 3rd time in 3 years) I was stable for months but unable to drop lower without negative impact on movement. 3 weeks ago I took a howler of a cold which is taking most locals 5 weeks to clear. I am much recovered but daily more exhausted. Standing up is a task which requires willpower ! Also last year I tore muscle from my pelvis and thigh in a riding accident and suddenly that leg is weak and painful, no swelling or heat just sudden stabbing pain and the gives way momentarily. Does anyone know if this might be related to ped?
I am considering increasing Pred just to get through the utter exhaustion and to fend of further stiffness which I can feel rolling in. Any thought?
Also and this may be totally unrelated but, while I was at the worst of the virus I sweated so badly I had to change 3 or 4 times a day. I was not at all hot . Always cold and clammy. I decided to check temp and found it on the low side 35.4 under my left arm and 36.1 on exactly the same position on my right side . I thought this was weird so for the following 2 weeks I have checked it and repeatedly found my left side measurably colder than my right . Any idea why?
You would think I would ask my GP but there is not a lot of point in that. I avoid them as much as possible.
Thanks for letting me rattle on, it’s hard to talk without sounding health obsessed or like I am moaning so I tend to keep it all in my head, sometimes it feels good to share