I have a simple question - if I have walked up my flight of stairs, spent 5 minutes bending over sorting out my washing, carried it downstairs , walked to the machine and then loaded it - is it reasonable to be a bit out of breath which stops as soon as I sit down because I’m exhausted. To me it is with PMR, trying to explain it to my partner(who is a medic!) is very difficult!
Your views would be interesting to hear!
What dose of pred are you on? I noticed that I did get out of breath walking uphill in the early days and higher doses but I've noticed recently that I amnot out of breath walking up the steepish and very ish hill to the park where I walk the dogs. I would say that I've noticed this decrease from about 5mg and below - now on 1.5mg and don't have any bother. That's just me and I have had a pretty symptom free descent from initial 30mg PMR wise most of my problems were pred related - breahtlessness, not sleeping,hyperactive......I'm sure someone with more scientific/medical knowledge will chip in with more factual info soon.
Hello. I did get out of breath on doses above about 25mg. Could be PMR, Pred or reducing who knows? However, with your history of atrial fibrillation, deep vein thrombosis and resulting pulmonary embolism, I’d get it checked out, especially if it’s new.
Hi Whatgrange
I’d be out of breath just thinking about doing that all in one go! Joking aside, l get very short of breath & a couple of years ago l was tested for Heart Failure, but heart OK, l had an ECG, Chest X-ray & it was the extra weight putting stress on my lungs, I was on 20mg Pred then
I’m on 11mg now & bending over, walking upstairs makes me short of breath, a side effect of the excess weight caused by the Pred.....
I also suffer with fatigue but if l walk too fast for me, l’m puffing & panting!
What dose of Pred are you on?
MrsN
From relapse 20 for a week, 15 for the past month, going to 14 on Saturday! My partner finds it hard to understand the effort involved in doing things. But as a medic she watches me like a hawk! Nothing is going to happen to me on her watch! I appreciate it must be a difficult when you know most of the ‘what ifs’. But she was very interested in what the forum might say.
Many thanks for all your replies. They are much appreciated!
I’m currently 2stone heavier than l used to be & 3stone when l was on 20mg & it does take its toil, bending for me is somewhat worse.
Take Care & glad you have someone to watch over you 💕
Worth checking your pulse, when your OK & when you’re short of breath & check out your BP too 🌷
I really agree with the weight problem. I’m 2 stone up on what I used to be, bending over is unsurprisingly not good! Neither is carrying that weight around normally! My pulse and BP are ok.
🤸🏼♀️
Not the Pred itself but the increase in my weight caused by the Pred; both my GP & Consultant concurred. My GP carried out tests to rule out heart failure & it did improve as l lost weight, unfortunately with the increase of Pred the weight has crept up again but l’m optimistic it will improve again as l reduce the Pred.
It is a combination of (probably) poor blood flow to the muscles, which are being attacked by the autoimmune part of the disease - mimicking flu in so many ways - and the pred, which I read recently in a report of a science study has an effect on the oxygen levels in the muscles. It is an ongoing illness.
At your stage I would have been sitting down after the stairs, never mind the rest of it!
What branch of medicine is she in? Would you feeling as you do with flu be surprising to her? And I'm sorry I can't give you the reference - it isn't even "in print" yet, it was presented at a meeting in July and is just entering the review process!
GP and Retired paediatrician! Not many children have PMR! As I said to Mrs Nails - putting on the weight doesn’t help!
No! And I bet her colleagues sent her all the small people ...
Dizziness and shortness of breath. 
Pains worsened when breathing in
Involuntary sobbing breath
my biggest problem now is out of breath low oxygen very little energy Doctors seam to put it down to AF But I am not sure 
Noisy night breathing with prednisone?
