PMRproAmbassador4 years ago

I've never seen it included in GCA lists - but it can be a sign of other things that may be associated with GCA such as TIA/stroke if it is one-sided. Myasthaenia gravis should also be considered - though it usually gets worse through the day as you tire and is bilateral.

I'd wait another few days at least before tapering - this isn't a race.

Janstr in reply to PMRpro4 years ago

Thank you. If it could be a TIA do you think I should see my GP tomorrow?

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PMRproAmbassador in reply to Janstr4 years ago

If you've had it a few days and it isn't improving then you need a medical opinion.

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Soraya_PMR4 years ago

Bell’s palsy? Usually involves some facial paralysis as well.

Lyme disease?

Old age?!!!! 😮

Did i read somewhere that someone had puffy upper eyes (prob due to pred) causing that ‘droopy’ look?

YuliK in reply to Soraya_PMR4 years ago

I don't know how 'young' Jan is, but I have droopy eye lids and my plastic surgeon said it came with old age. I'm 76 years

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Janstr in reply to YuliK4 years ago

Thanks. I will get a GP appt & check

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DianeA14 years ago

I cannot answer your questions, but I am very sorry to hear about your dear pet.

Janstr in reply to DianeA14 years ago

Thanks Diane.

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Marilyn19594 years ago

My husband has droopy eyelid syndrome and has been diagnosed with condition called Ptosis. We have never heard of it before but there are probably several things it could be. So rather than trying to second guess what it might be I would urge you to seek a qualified consultation either with GP or optician since both can refer to opthalmist.

Janstr4 years ago

Thanks for your help

yewtree4 years ago

I have been on steroids nearly 3 years and last year was diagnosed with ptosis by the optician. Also had to have 2 cataract operations. Saw the eye specialist who said the eyelids would be dealt with after the cataract operations. Last November my left eye completely closed and I developed double vision. After a blood test taking 8 weeks (with eyelid having to be taped up) the test came back positive for Myasthenia Gravis. 8 weeks later saw a specialist who put me on a drug four times a day,which opens the eye and corrects the double vision but may be on it the rest of my life. Meanwhile still waiting for the second cataract and possible an operation for ptosis on left eyelid. All part of life's rich pageant. Oh and by the way I also have to take 5mg steroids daily for ever for the Myasthenia!

yewtree4 years ago

Should have said that the closed eyelid co-incided with coming off steroids so the steroids were keeping the eyelid open - when I had to go back on to them because of stiffness the eye half opened!

Janstr4 years ago

Thank you Yewtree. I have looked this up on the net & hope it's not that, but if it is, as you say, it's part of life. I see that there is a blood test which is positive for 85% of patients with the condition & will ask my GP for this test. I have just come back from seeing her & she thinks it may be GCA related & has increased pred just in case & to see if it helps. From what you are saying it may help.