I was diagnosed with PMR & GCA in Jan 2018 after nearly a year of symptoms.
I was initially on 40 mg of pred, now on 9.5 where I have been for 4 weeks as I didn't want to continue tapering as was in a period of stress having to decide & then putting down our 17 year old cat. Also I had thought of trying to taper to 9mg 10 days ago, but didn't as my CRP which has been less than 1 for some time, went to 3 which I know is in the normal range, but heading in the wrong direction & I also had shoulder pain & some calf pain & a low grade headache behind my right eye.
Over the last few days I have noticed my right eyelid drooping & have also had occasional involuntary sharp intakes of breath. This was happening frequently pre diagnosis & stopped when I went on the pred. This is the first time it has reoccurred, but is not as intense as it was before. I currently have no other symptoms ( headache & other pain has gone) & CRP today is back to less than 1.
So a couple of questions..
1. Is this droopy eye part of GCA & if so should I be worried about it?
2. I was going to start tapering tomorrow to 9. Is this a good idea?
I've never seen it included in GCA lists - but it can be a sign of other things that may be associated with GCA such as TIA/stroke if it is one-sided. Myasthaenia gravis should also be considered - though it usually gets worse through the day as you tire and is bilateral.
I'd wait another few days at least before tapering - this isn't a race.
Thank you. If it could be a TIA do you think I should see my GP tomorrow?
If you've had it a few days and it isn't improving then you need a medical opinion.