This article is not about PMR, but we can relate... - PMRGCAuk

PMRGCAuk

21,303 members40,390 posts

This article is not about PMR, but we can relate...

GOOD_GRIEF profile image
21 Replies

nytimes.com/2019/02/18/smar...

Written by
GOOD_GRIEF profile image
GOOD_GRIEF
To view profiles and participate in discussions please or .
21 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Thanks for this.

We certainly can relate.

Although I’m over GCA I have OA - which brings it’s own challenges.

GOOD_GRIEF profile image
GOOD_GRIEF in reply toDorsetLady

What I'm discovering is that everyone has challenges, and we all need to support one another.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGOOD_GRIEF

That’s for sure.

GOOD_GRIEF profile image
GOOD_GRIEF

I skipped past the bits of her symptom descriptions to get down to the part of the article that talks about how we and the people around us are affected by chronic illness, and the unrecognized need for mental health professionals and support groups to help us cope with what's happened to us.

SheffieldJane profile image
SheffieldJane in reply toGOOD_GRIEF

Sorry about my reluctant post. I properly read it and realised it was helpful. Many thanks!

GOOD_GRIEF profile image
GOOD_GRIEF in reply toSheffieldJane

Don't worry about it. I was eating lunch when I found the article, so yes, I skipped the introand got to the bullet points.

PMRpro profile image
PMRproAmbassador

Excellent article!

alvertta profile image
alvertta

I really relate to this article. Thank you.

teesher profile image
teesher

The article says it all really especially: The patient’s mission is to grow into this challenge, create meaning and be the best person they can be.

GOOD_GRIEF profile image
GOOD_GRIEF in reply toteesher

Well, there's really nothing special about that, is there.

They call it "adulting" now.

karools16 profile image
karools16

Thank you. Very interesting and relevant.

Hollyseden profile image
Hollyseden

Good article. Liked how she recommended joining a support group, just like this forum 😊

Marijo1951 profile image
Marijo1951 in reply toHollyseden

Yes, that was my first response too. I joined this forum the day I was diagnosed and I'm so glad I did...

Longtimer profile image
Longtimer

So very true!

morrison profile image
morrison

What a wonderful article. Made me feel quite emotional as they are many if not all of us on this site who can totally relate to chronic illness and it's mental challenges. Going to print it off and give a copy to my Doctor. Thank you. X

GOOD_GRIEF profile image
GOOD_GRIEF in reply tomorrison

Just goes to show how NORMAL we are...

Our thoughts, our emotions, our uncertainties, our fears, our depressions...all NORMAL reactions to the situation in which we find ourselves...

That in itself is comforting knowledge...

bunnymom profile image
bunnymom

Excellent article and very relevant. I don't know how I would have coped without you all telling me all my feelings and aches were normal. Thanks for posting this.

Mic67 profile image
Mic67

Thanks for sharing.

I relate to what she said about integrating ''a new reality into one’s life and worldview''. I am ABSOLUTELY struggling with this.

I have some other issues as well as possible PMR and I simply can not accept - on an emotional level - that this is me now, forever! That denial, and the depression is really hindering me I think and I have actually self referred to an NHS counselling service to try and deal with this specific issue.

PMRpro profile image
PMRproAmbassador in reply toMic67

It isn't forever, it is for now. Once you accept it is amazing how much easier living with PMR seems to be.

4840 profile image
4840

Excellent article! Very emotional. Thank you for sharing. I forwarded the article to my two children to read.

GOOD_GRIEF profile image
GOOD_GRIEF in reply to4840

That's a great idea!

Just remember one thing - people who love us might not always understand, but they do care...

Not what you're looking for?

You may also like...

re pmr or not article

sorry, that comment along with back specialist, was shoulder specialist, both said, couldn,t...
arvine profile image

Not PMR but RA

My Rheumatologist said I do not have pmr but ra based on all signs like hand cramps and thighs...
Seal49 profile image

Is this PMR

Hya everyone. GCA diagnosed 19 months ago I've successfully reduced pred to 5mg but just dropped...
Pamela60 profile image

Is this PMR?

Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely...
Evie1977 profile image

Article in today's paper about PMR

Someone called Jo Waters (doesn't say she is a Dr) has put a full page article in the Good Health...
Purplegloss profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.