This article is not about PMR, but we can relate... - PMRGCAuk

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This article is not about PMR, but we can relate...

GOOD_GRIEF profile image
21 Replies

nytimes.com/2019/02/18/smar...

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GOOD_GRIEF
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21 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Thanks for this.

We certainly can relate.

Although I’m over GCA I have OA - which brings it’s own challenges.

GOOD_GRIEF profile image
GOOD_GRIEF in reply to DorsetLady

What I'm discovering is that everyone has challenges, and we all need to support one another.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to GOOD_GRIEF

That’s for sure.

GOOD_GRIEF profile image
GOOD_GRIEF

I skipped past the bits of her symptom descriptions to get down to the part of the article that talks about how we and the people around us are affected by chronic illness, and the unrecognized need for mental health professionals and support groups to help us cope with what's happened to us.

SheffieldJane profile image
SheffieldJane in reply to GOOD_GRIEF

Sorry about my reluctant post. I properly read it and realised it was helpful. Many thanks!

GOOD_GRIEF profile image
GOOD_GRIEF in reply to SheffieldJane

Don't worry about it. I was eating lunch when I found the article, so yes, I skipped the introand got to the bullet points.

PMRpro profile image
PMRproAmbassador

Excellent article!

alvertta profile image
alvertta

I really relate to this article. Thank you.

teesher profile image
teesher

The article says it all really especially: The patient’s mission is to grow into this challenge, create meaning and be the best person they can be.

GOOD_GRIEF profile image
GOOD_GRIEF in reply to teesher

Well, there's really nothing special about that, is there.

They call it "adulting" now.

karools16 profile image
karools16

Thank you. Very interesting and relevant.

Hollyseden profile image
Hollyseden

Good article. Liked how she recommended joining a support group, just like this forum 😊

Marijo1951 profile image
Marijo1951 in reply to Hollyseden

Yes, that was my first response too. I joined this forum the day I was diagnosed and I'm so glad I did...

Longtimer profile image
Longtimer

So very true!

morrison profile image
morrison

What a wonderful article. Made me feel quite emotional as they are many if not all of us on this site who can totally relate to chronic illness and it's mental challenges. Going to print it off and give a copy to my Doctor. Thank you. X

GOOD_GRIEF profile image
GOOD_GRIEF in reply to morrison

Just goes to show how NORMAL we are...

Our thoughts, our emotions, our uncertainties, our fears, our depressions...all NORMAL reactions to the situation in which we find ourselves...

That in itself is comforting knowledge...

bunnymom profile image
bunnymom

Excellent article and very relevant. I don't know how I would have coped without you all telling me all my feelings and aches were normal. Thanks for posting this.

Mic67 profile image
Mic67

Thanks for sharing.

I relate to what she said about integrating ''a new reality into one’s life and worldview''. I am ABSOLUTELY struggling with this.

I have some other issues as well as possible PMR and I simply can not accept - on an emotional level - that this is me now, forever! That denial, and the depression is really hindering me I think and I have actually self referred to an NHS counselling service to try and deal with this specific issue.

PMRpro profile image
PMRproAmbassador in reply to Mic67

It isn't forever, it is for now. Once you accept it is amazing how much easier living with PMR seems to be.

4840 profile image
4840

Excellent article! Very emotional. Thank you for sharing. I forwarded the article to my two children to read.

GOOD_GRIEF profile image
GOOD_GRIEF in reply to 4840

That's a great idea!

Just remember one thing - people who love us might not always understand, but they do care...

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