Having recently been diagnosed with Ocular Myasthenia Gravis rather than the GCA it was thought to be for the last few years I sort of breathed a sigh of relief that there was now a definite diagnosis.
Big mistake as the PMR decided to flare I think. I’ve been at 5mg pred for 4 months but have got increasingly painful shoulders, very painful feet and Achilles (told it was probably plantar fasciitis), if so then I guess it may be due to increasing inflammation after coming down to 5mg. Now my hips are beginning to ache.
I’ve had a cold for a few weeks so I guess it may have provoked a flare? My question would be how much should I increase pred. Could I bump to 10mg for a few days to see if it improves and presumably I would then need to come down again at 1mg per month? Or if 10mg for a few days work then could drop to say 7 or 8 and then do the monthly reduction?
Hope that all makes sense. Having been on pred for 9 years and now at my lowest dose I’m reluctant to go up but there has to be a judgement in terms of quality of life.
Thanks for any advice