It seems like the second I wake up my mind starts taking over and I can’t shut the thoughts down. I’m a few months in so I am guessing it must be the pred. Going back to sleep is impossible so I just get up, take the pred, and sleep some later. I hate living like this and I wonder if talking therapy would be something useful to try. The board here is great but maybe a mental health professional could be of value. Depression is not something I ever had until now and it is not pleasant.
My Racing mind upon waking: It seems like the... - PMRGCAuk
This happens a lot to me. I usually get up and find something to occupy my mind, even if it's just TV. Remember the forum is here 24/7 so there may be someone to 'talk' to. I now quite enjoy the quiet of the night however it can get cold in the winter.
I am now down to 9.5 mg and I find it helps to take it in the evening, less likely to wake up. It was leg pain that woke me but my mind was always racing.
Make sure to get some sleep during the day while you are going through this stage just a power nap sometimes.
Best not to worry to much just accept it as part of the journey.
Yes, Jane, I do, too. I would take the pain over the things that go on in my mind. I don’t know much about mindfulness. But I would like a therapist to talk to. I internalize and always have. Not good. The only one I really talk to is my daughter but I feel terrible about burdening her with my pains.
Your daughter won't think that you are a burden, she will be pleased that you are opening up to her. Love and hugs Lynne xxxx
I had a therapist prior to PMR and she was a great help and resource, especially in the early days. It felt good to get all those worries out of my head, and it was easier to be totally honest with her without worry of judgement. As supportive as my family and friends are, I am more likely to hold back as not to cause them too much concern. A professional therapist is also an expert and well versed in an array of therapeutic techniques to help meet the unique identified needs of their clients.
I only experienced restlessness and my mind racing when on first two initial doses, but I was also feeling somewhat panicked as well back then. Pred can cause sleeplessness so I’ve read on here, and I believe PMR can cause depression (as if the pain, stiffness, and potential side effects aren’t enough). This condition takes a mental, as well as physical toll. No shame in getting help if you need it, whether it be talking therapy, medication (pharmaceutical or otherwise).
I’m also big on support groups, and this forum serves to help me greatly. What I’m also seeking though is someone I can talk to, preferably organically, who also has PMR, who “gets it”. Who is ok with discussing our woes and celebrations as we heal. I know that I can’t do this alone.
Hope you get the help you need, good for you for recognizing this, it’s shows your dedication to your self care. We are here if you need us!
Hi glynisE..this is an old post so may not get seen by many people. Just check how long ago posts are made otherwise no one can see your useful contributions.🌻
I don't know. Is it this actually message that pops up or have you scrolled down to related posts? Perhaps check your setting in your profile to check you are receiving just what you need. If it carries on please report to HUnlocked help desk. It would be a shame to miss your comments. 🌻
Not "our" email, they are generated automatically. I have had a suspicion there is a gremlin but HU don't agree. They didn't agree when someone had her settings changed somehow - until I and a load of others all complained of the same problem.
When it happens could you please complain, with the email you got notifying you, to the Support Centre.
Hi, I have been like that all my life, even before the Pred. I don't get up I rest my body and read or listen to the radio, I don't get much reading for pleasure time, so I have learned to welcome the quiet time in the night. I am tired in the morning whether I sleep all night or not so again have had to make strategies to deal with that. I have learned the worst thing for sudden waking is to worry about it.