Tapering from 6 to 5 and now to 4 has been "interesting" to say the least. I worry less these days about a flare. That might or might not be rational. I haven't had any stiffness to speak of since starting to take delayed release Pred at nighttime. These days I am more worried about energy, memory, and emotions. I'm interested in what other people have experienced at these levels.
I know we all are different. I have had some paradoxical reactions to Pred in that I slept better when I started on Pred (at 20 mgs.). I also felt I had better recall for some things than prior to starting Pred. Now here I am at lower doses sleeping less well and having more brain fog.
At 6 mg. I was still getting my late afternoon weak wobblies that wore off in the evenings. My body still felt pretty loosely knit with a fair amount of random aches and pains. Some felt a bit like PMR, but mostly I began to get a return of some of my arthritic aches. My right shoulder, hardest hit by PMR seems to be permanently susceptible to aches and pains if I use my right arm the "wrong" way.
At 5, the weak wobblies stopped but I was an emotional basket case. PMRpro suggested I was probably having some adrenal and HPA issues. I stayed at 5 for two months and finally stabilized. I felt like myself. My body also began to feel more normal. But I gained back 4 pounds of the 25 pounds I lost. I think this had to do with re-addicting myself to carbs when I had to go on a low fiber diet due to the dysentery I got in Mexico. I'm struggling more with maintaining weight in the last 3 months than at the higher doses since I have more carb craving. I also noted at this dosage that I began staying up later at night, so getting less sleep on the average.
As I started the taper from 5 to 4, I hit a bit of what I hope is temporary brain fog and not the onset of dementia. Quite suddenly I am less able to multitask simple strings of tasks. Senior moments are coming up like, where I put something down, or what my intention was for walking into a particular room, or going into the garage and coming back with only one of the two items I intended to get because I got myself involved with something else. It feels more like a distractibility issue than a short term memory issue, though I am checking my calendar more. I am not having any problems at work where I need to concentrate and remember things I'm told. But around the house I'm feeling like the proverbial absentminded professor.
Are these "symptoms" likely to go away? How long should I plan to stay at 4 to see if they abate? Should I wait to see if they abate before starting a taper to 3?
Just wondering what others have experienced at these doses.