Since starting mega does of steroids in November for PMR & GCA, I have felt a LOT of weird and unusual things, but "pain" per se, has not been one of them.
Even my old trick knee has quieted down!
Yesterday, I noticed my shoulders were really tight. Mostly across the levator scapulae, the trapizius, and into the deltoids. Also, I had a slight ache in one of my thigh muscles.
Now, I'll be the first to admit that I occasionally "over-do-it," and the day before yesterday, was no exception. Carrying two good sized carry bags, from Waitrose, filled with milk, flour, sugar, eggs, a bottle of wine (not for me!) and an array of delightful delectables... I made my way up the hill and then up the one flight of stairs into the flat. And, I cannot tell a lie... the day before that I cleaned the bathroom. : (
So, since I've been on 70mg of Pred (or higher) since New Year's, are these ghost pains just that? Random, minor aches and pains from over-doing- it, or are they something more sinister?
Unfortunately there seems to be no get out of jail card free with steroids and non PMR aches and pains continue, especially pain from different posture. Some lie dormant like your trick knee only to pop up when you are on a lower dose of Pred. You definitely did overdo it with your shopping trip. We do it as a joint enterprise, I spend and pop interesting things into the trolley, he pays, lifts and loads and unloads the car. Seems fair to me.
I hoped that was the case! Thank you!!! Going to the shop is my daily ritual; it's the only thing that gets me out of the house. Hubby's at work, so I go it alone. Usually it's one bag; just what I need to make dinner... but as yesterday was Lemon and Cardamon Cookie Day there was a lot more! Thank you, have a GREAT day!
You have a great day too. We’ve started it early! There is always on line grocery shopping but you do have to plan ahead, it cuts down on my impulse buying though.
Have you considered a shopping trolley I would not be able to manage without mine .I don't care if I look like a old lady it serves a purpose i cant carry things anymore.
I f i do i have the resulting tightness across the shoulders and tenderness on touch .
We are off to see Sleeping beauty a Ballet today with some shopping first but I wont be carrying anything but a very light handbag
Sailing along on segwey, statuesque and stately, hunkey fireman alongside to help on and off, and to carry stick. Superbly styled elegant trolley in tow full of delightful and intrigueing purchases.
Hi mamici1. I bought my first trolley a few years ago from that website. I believe they are Spanish. I got the black and white striped one and I love it. People stop and and ask me where I got it from (younger people) as its so cool. It's so smooth to pull along and you get loads in it. I actually put my shopping in it as I go around waitrose then empty it at the checkout and then repack after it goes thru til and nobody bats an eyelid. Take care cc 🤗
My sister has what they call the Rolls Royce of shopping trolleys....expensive but worth it...many people admire it.....even has a cold storage!.....she has RA and at 50 it has been a godsend
A friend once gave me a shopping trolley for my birthday. I about kissed her on the lips. I lived in an area where if I could find a parking space 5 blocks from my loft, I felt blessed. Being lazy and wanting to get everything home in one trip, I often carried more than I should have and hurt myself. (I don’t think I’d seen a shopping trolley before that.). I used that with such gratitude! And I noticed others getting them, too. I still use it for work sometimes. I never associated it with the age of the user, but with distance and the weight of the packages. Good thing, too, because It saved my arms and back.
How did the cookies turn out? Did you enjoy using the antique cookie press you got as a gift? And are you feeling better today?
Oh, thanks for asking... First , I know nothing about baking... it was just something I want to try. The dough, for this recipe was a bit crumby and rustic for a cookie stamp I think. The recipe called for rolling dough into a ball, pressing flat with a mug bottom and then using cookie stamp... but when I did the crumbly bits got stuck in the wooden stamp! I was told they tasted GREAT, which is all that really mattered. They looked okay. Think I need a proper shortbread recipe next time.
Ha! I know from where you speak! Shopping trolly!!! old lady stuff. NO one uses them here in Minnesota ..mainly because we cannot drag them over the snow drifts...but also because we live in our fool cars. However when I spend a month or two in Stockholm I realize I AM an old lady and entitled to pull that funny little cart onto buses and subways with no one batting an eye. (since no one is really looking at me anymore) And I love it!! Go for it. Its a godsend! There are benefits to being "invisible" ! And now when we talk to ourselves inadvertently people just assume we are on our phones! (life was made for us boomers!)
Don't worry about pulling a shopping trolley. All those glamourous air hostesses (or whatever they call them now) can be seen pulling teeny cases behind them. No-one carries a suitcase nowadays, even the guys push them along on dinky wheels. Embrace your shopping trolley.
I use a roller(not the car) to go to my local wAitrose it carries a fair bit of shopping but cannot disguise the fact I feel like an old woman using it, but is a godsend .
Before my GCA last March blew up practically over night, during that week I was able to cycle 6 miles to Work and back and spend a day on my feet, go to the gym, do hours of hard labour in the garden without noticing. Pred (60mg for a short time and then 40mg for 6 weeks) then started to ‘dissolve’ my muscles rapidly. Within a couple of months my muscle bulk was noticeably less. Even basic domestic tasks would cause a pulled muscle and as for carrying shopping, well that was a no no and still is. I kept walking though even at my Pred weakest and wobbliest, even if it was the only thing I could do for the rest of my day. Your doses are much higher, so I really am not surprised you are are feeling the previous activities.
I like to do the scan and shop best. Pick up things only 4 times then. Going shopping without it means picking thing up 6 times. It doesn't sound much until you think about how many items you might pick up! 10 things = 60 reps plus carrying them home.
I could do your 400 yards walk to Waitrose, but I wouldn't be able to buy anything as I couldn't carry those bags! When I pick up 4 pints of milk, it feels like a gallon. I go shopping in the car, put the individual items into the trolley and same again off the checkout - then from the trolley, into bags lined up in the car boot. When I get home, OH lifts the bags into the house. If he's not at home, single items are unloaded from the car into the house.... (OH works, but from home, so I'm lucky.)
Those trolleys look amazing - one will really suit you - post a photo! Just be careful hauling it up to the flat.
If you've ever been to a 'Knitting and Stitching Show' (maybe not!) you would have seen endless floral trolleys being wheeled around to contain the purchases of yarn etc. They're real trip hazards in a crowded exhibition hall!
Yes, I thought the trolley's looked cool and funky... and living in Brighton ANYTHING goes, so why not. I looked for one with skulls, but it was not to be found. I will post photo of my first ever TROLLEY OUTING! Hahahahaha! No worries, we have elevator so I'll use that if I'm trollying! : )
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I am sure there will be skull sticker online somewhere.
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Could be "wrapped' like they do with high end cars now.
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4 more days on 3mg then stop!
GP tapering me......pre PMR diagnosis.....and I’m on a trip!!
Have PMR is this now GCA?
Reducing Prednisone dose again, am dose from 10 to 7.5mg
