Blood results

[Allsgrandso]

Just got bloods back and from what I can gather my crp is now .5 and it was 48.7 in July. My esr is now 3 and it was 53 in July.

Feel like doing a wee happy dance here 💃🤗 delighted and wanted to share x

[SheffieldJane]

Yay! 👏

[PMRpro Ambassador]

Excellent - are you now reducing?

[Allsgrandso in reply to PMRpro]

Yes I’m nearly there with tortoise not hare method going from 10mg to 9. Day 25 today and feel really good apart from bit of soreness and stiffness in shoulders first thing. Due back to rheumatologist next week.

[DorsetLady PMRGCAuk volunteer]

Well done!

[Hollyseden]

👏👏👏 great news!

[Mariemcdo]

Dance and be joyful... me too CRP is down this month from10 to 8 and ESR down from 5 to 3 so I too am dancing and cautiously celebrating. 1 year into the dis- ease and have managed to taper down to 2 mg per day and no aches or pains. Still struggeling with fatigue though. Still using lots of alternative treatments and supplements to support the healing x

[Allsgrandso in reply to Mariemcdo]

That’s fabulous Mariemcdo 👏👏👏 2mg seems like a long way off but slowly slowly I’ve learned from the wise ones here 🙏

[powerwalk in reply to Mariemcdo]

Oh the fatigue is just nauseating. Very hard to handle - most days I just want to fall asleep at my desk.

[Allsgrandso in reply to powerwalk]

Oh dear! Are you on a low dose of preds now? Is that why you are so tired? X

[powerwalk in reply to Allsgrandso]

yeah on 2mg. I feel like hell - I just can't fope with the tiredness - its been going on so long.

[powerwalk in reply to powerwalk]

ha ha - COPE - not fope!!!

[PMRpro Ambassador in reply to powerwalk]

You need to get your doctor to do some adrenal function investigation - that is the most likely reason for such a level of fatigue at this stage.

A synacthen/ACTH stimulation test would be a good idea.

[powerwalk in reply to PMRpro]

thank you

[Mariemcdo in reply to powerwalk]

Have had to hand my notice in at school! Just can't do it any more too tired and exhausted.

[PMRpro Ambassador in reply to Mariemcdo]

Then you too need to have your adrenal function assessed.

[powerwalk in reply to Mariemcdo]

know the feeling - been tempted myself. I keep thinking "next week I'll feel better"!!!

[yogabonnie]

Happy Happy dance!

[Jackoh]

Well done! Xx

[Rugger]

Is your name really "All's Grand So...."? In any case, all is grand just now!

Take it slowly but surely. I'm tapering at 0.5mg per month now, after a flare this summer, when I had to increase my pred from 4mg to 10mg. It seems slow, but 1mg per month was obviously too fast for my PMR and my figures crept up. Keep an eye on them so you can nip any rise in the bud and remember the guide about not reducing your pred by more than 10% of the previous dose.

Best wishes.

Me: PMR 19 months on 7mg pred.

[Allsgrandso in reply to Rugger]

Yes all’s grand so is the name lol thanks for the good advice Rugger. I’m very aware they could go back up if I move to fast. That must have been really annoying getting to 4 and then having to go back up to 10mg. I feel like I’m better the past few weeks but still pacing myself as best I can. Hopefully it will pay off. Thanks for good advice x

[newgirl73]

Dancing with you! So good to hear your good news. I heard this afternoon my CRP is the same as yours, down from 75 in October on diagnosis of PMR, then to 24 so pred down from 15mg to 13mg for last fortnight. The fatigue is something other - so strange to feel capable of walking the length of the supermarket with eyes closed - but don't!!! Again, great news.

[Allsgrandso in reply to newgirl73]

It’s a brilliant feeling newgirl 🤗 well done! Funny thing I’ve no fatigue at all past few weeks, just feel normal again. Onwards and upwards x