😖getting worse in the mornings : Oh dear tapering... - PMRGCAuk

PMRGCAuk

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😖getting worse in the mornings

Rocketronzy profile image
•6 Replies

Oh dear tapering down from pred.

Doctor seems a bit clueless 15 to 0. In

Week. 😲 Now on 15-10 -15-10 and so on two weeks now almost on end of 2nd week So next week is suppose to go to 10-5-10-5-10-5 etc for another 2weeks.

This morning was up at 5.30 sore head tempers forhead. Just above knees carlves stiff and tingling feet.

And worringly lasting longer I used to get rid of them in an out or so but not now.

Had fussy head ake all day. 😲

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Rocketronzy profile image
Rocketronzy
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6 Replies
•
Therealsue profile image
Therealsue

That's looks like an incredibly fast taper, Ronzy. Mine was considered rapid and that was alternating doses daily for three weeks then sticking with the lower dose for 3 weeks before reducing again and I only dropped by 2.5mg at a time. I think another visit to your Dr is in order, especially if your head is sore.

jinasc profile image
jinasc

The current thinking for the past few years, is no more than 10% at a time.

So either look on this site for the thread that is called Steroid Taper Web Application and take a good hard look at it, and then take it to your GP and start to educate him.

piglette profile image
piglette

Hi Ronzy, you say you have been on pred for years. Was that for PMR? What is the sudden need for you to reduce so fast?

Rocketronzy profile image
Rocketronzy• in reply topiglette

😳🤔 they are panicking not me. 😲 I can see me falling out with them. Wouldn't give me any ones.

They seem tone treating me like a junky 😤

Getting lots of bad symptoms. 😲

We'll see

Thx. 🌹

Rocketronzy profile image
Rocketronzy• in reply topiglette

Nowt but the doctor panicking 😲

ShellyC23 profile image
ShellyC23

Seems a bit fast to me. My mother has PMR and is currently reducing at a rate of 1mg every SIX weeks after the last attempt proved to way too fast for her. On the week she is due to decrease she has one day old dose then one day reduced dose alternately and so far this seems to be working. Last time she got to 9mg and became so ill that much to her dismay the GP increased her back to 14mg.

Next week she will be down to 9mg again so I'm keeping my fingers crossed that slow and steady wins the race.

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