Been another wet afternoon, so been thinking how to explain GCA/PMR slightly differently, so here goes. Hope it helps.
Living with GCA and PMR is a bit like living with a recalcitrant teenager. You're coasting along through life quite comfortably, with maybe the odd unusual occurrence when suddenly out of the blue this 'monstrosity" hoves into view.
Everything you took for granted prior it's appearance is suddenly turned upside down - it grumbles first thing in morning making getting out of bed an impossibility without the accompanying grunts and groans leaving you feeling like a bear with a sore head...and shoulders, hips and anything else you like to mention.
The mess it leaves in its wake makes you tired just thinking about it, apparently making beds, tidying rooms and washing-up are a definite no-no nowadays.
It invites a mate or two (Pred & maybe others) around for a sleepover - you must be joking. Sleep's the last thing on their mind - if we're awake why isn't everybody in the house wide-eyed and bushy-tailed!
And all those endless journeys with it to see professionals who tell you - "he must do better" and "he'll never get anywhere in life if he doesn't listen in class and follow the curriculum".
So you sit down with it, and have a frank head to head, stating all the obvious things, like..if you want a good job, earn lots of money and be happy in life you need to knuckle down and follow the rules. Okay Mum (or Dad) it says, and that's fine for a time, sometimes a few weeks, or months or even a year and then it gets a bit too ambitious and raises its game (probably to impress someone) and it all goes to rats - again. So back to the "must try harder" syndrome accompanied by the mutterings under breath of 'I'm bored with this now, wish I could leave school", "nobody understands what I'm going through", "why can't I go out and enjoy myself with my mates", "does my bum look big in this", blah, blah, blah.
Actually as it gets toward the higher teens, and the hormones stop raging quite so erratically, it somehow becomes much more manageable, and amenable almost pacified, but don't be lulled into a false sense of security it then find new friends, Ade & Des (nod to MB - don't want to be accused of plagiarism) who again leave you shattered and not knowing whether you're coming or going. Or as the kidz say - on your a*** or your elbow.
Eventually when all that teenage angst is over, it decides it's now fully grown up, and thinks it might like to strike out on its own and actually move out!
Life returns to normal .....ahh bliss! One day, one day!
See, looked at like that, it's not all bad!