update synachen test.............. gca...

[karools16]

Recently, I posted that I was having this test to see if my adrenals are working sufficiently. At that time, The Consultant wanted to put me on a completely different drug, 3 days prior to test. I told them I was reluctant. This afternoon, I had a call from the hospital saying I was to stop the Pred the day before test, which is this Sunday, and also on the actual day i.e. Monday.

I don't want to think the worst, but can anyone tell me, to what dosage Pred would I have to go, should my adrenals not be ok. Sorry, that grammar didn't sound right?

[polkadotcom]

It depends entirely on you as an individual. I was diagnosed with secondary adrenal insufficiency some years ago and apart from a few months on 7.5mg (to test the waters) I have been on 5mg since then.

It's generally accepted that the norm is between 5mg-8mg.

[karools16 in reply to polkadotcom]

Thanks for that, polkadotcom. I had visions of going up to 20mg/more.

[PMRpro Ambassador]

Depends on how un-OK they are. The "physiological dose" is said to be about 7.5mg of pred - the equivalent to the amount of cortisol the body requires. That is about the usual level.

However - if they were to decide to manage you with hydrocortisone the numbers would be higher - but it is still the same effective dose.

[karools16 in reply to PMRpro]

Thank you PMRpro. I am trusting the adrenals will be fine. However, there are no certainties.

[PMRpro Ambassador in reply to karools16]

Only death and taxes ... (Probably Benjamin Franklin, not me)

[PMRandRA]

You will have to get that info from the rheumy I'm afraid. All the best 🌺❣️

[karools16 in reply to PMRandRA]

Had the Synacthen Test, yesterday. Will get results in a week's time, from my Endocrinology Consultant.

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Hi karools 16, I just wonder how many of us will be in your position or when we come to it. With you all the way, if you will ,if your up to it, please let us know the result .all the best ,John