Sorry to hear about your repeat of PMR. Miserable or what?!
From what I've learned here, I don't think the underlying cause of PMR (symptoms of an auto-immune disease) ever goes away totally. If we're lucky, it will go into remission (as in your case) but it can always rear its head again at some stage. As for the reasons why, who knows exactly?
The causes of Auto-immune disease and PMR are still a very complex area of medical research, and unfortunately there seem to be no magic solutions other than the Preds (steroids) to treat the worst of the symptoms in the meantime and give you some relative quality of life.
On the positive side (if you can find one!), at least you have some prior knowledge and experience of this horrible illness, and hopefully will be better-prepared than many 'newbies' in terms of what to expect the second time around.
All I can say is that you're in great company here expertise and support wise, and we also have some fun along the way.
Good luck on your (second) Journey with PMR - and try to remember that things can get better as well as worse. On, and Forwards?!
Your around, I left a couple of messages on your phone...............thought you must have dropped off the planet...............still want to print your stuff.
Sorry to hear you have PMR again, especially after such a long time being clear.
Of course your comments will help others, we all seem to react to the illnesses and the treatment differently, so it's good to hear how others cope - especially for newcomers.
Take care, and look forward to hearing from you soon.
I think your comments will help tremendously and I for one look forward to reading them!
At my rheum doc visit a few weeks ago we talked a little bit about the future. She asked me how I was doing with the idea of having something that is never actually cured, it just quiets down. I said it was easier to grasp intellectually than emotionally. She said that if I was one of the lucky ones I'd get off prednisone completely, but that for whatever reasons the PMR may decide to get active again at some point, even after many years. She feels I've done well with PMR to be at 5MG after 15 months (she started me at 10MG which worked very well). I only flared once at 8MG since switching to DSNS I've had no flares. We're now going to spend some time trying to sort out the best ways to deal with my other "itis" and "algia" issues...osteoarthritis, fibromyalgia, and the hip issue she is assuming for now is bursitis.
As you (and your very perceptive Rheumatologist) suggest, the challenges in coping with a serious illness like PMR are as great emotionally as they are physically / intellectually.
Clearly, the DSNS steroid-tapering method or its equivalents help greatly in the process of managing PMR symptoms for many of us, physiologically. But, from my experience, these very powerful drugs can also bring other, possibly more profound challenges psychologically too. The dreaded 'Brain Fog', deathly Fatigue and a multitude of other side-effects seem to 'go with the territory' of PMR - and steroid treatment for all sorts of illnesses. Many PMR sufferers here report this at the same time as the day-to- day niggling issues like bursitis, sleep deprivation and all manner of other things.
I think you hit the nail on the head about dealing with uncertainty - with PMR or otherwise on Life's Journey. Thanks for your insightful post, I'm sure this is a topic that will run and run!
MB
I'm sorry you find yourself here after 10 years, how frustrating that must be for you! One thing for sure, you'll find support and a lit if shoulders yo lean on here on this site!
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went to see rhemy
Immunosuppressed
Strange feelings 
Taper 0.5 mg by alternating dose
PMR -Dry Mouth-Sjogrens Syndrome
