Was told over a week ago that a letter was being sent by my consultant to the GP to prescribe a new drug. Have now found out it is still in the rheumatologists waiting signing off and I had hoped to get the prescription before the weekend.
I get bouts of what seems like bad sinusitus and have never got to the bottom of whether this is GCA or a different thing. I dont seem to have an infection but my nose is totally blocked, my head heavy like a lead weight, painful neck and a sound like rice crispies when I turn my head. I also have a dull headache and it feels painful to the touch running down my neck from my ears. Does anyone know the answer to this. I am always worrying that I have something else running alongside the GCA. The PET scan showed I have active GCA or it might be active large cell vasculitis . Any help would be appreciated.