So Angry!!!

[Janieb293]

I had to call ago today for a repeat prescription as my GP gave me 28 Pred tablets, which at 15mg a day, lasts 9 days! When I called today, the dispensary said I had had a prescription on the 10th I explained that I had almost run out, to be told that my Gp, who I had seen once, (and at the time I had commented that he was totally uninterested ) has stated that I am on 7.5mg!!!! Unbelievable!!!!! I waited for him to call me all evening...did he ring....NO!! I am so angry I can't tell you!!!!! I now totally understand how uninterested some GP's are!!!!! Sorry for the rant!!

[DorsetLady PMRGCAuk volunteer]

Hi,

He obviously didn't get a degree in Maths!

If he worked out that a pack of 28 tablets @ 5mg is going to last a month when he thinks you're on a dose of 7.5mg per day he's sadly mistaken. Oh Lordy!

Think he needs a lesson in maths and writing prescriptions!

[piglette in reply to DorsetLady]

My GP is hopeless at arithmetic too. My CRP had gone up, and on my notes she wrote it had gone down! When I pointed this out to her, she said it had only gone up a small amount, so I said it went up sixty per cent (I did maths A Level!), her reply was " If you want to look at like that." How else do you look at it for goodness sake?

[paddyfield in reply to piglette]

M children used get great amusement out of lighting the blue touch paper with my mother by dropping in the conversation the latest official claim that "the

r a t e of inflation was going down" but then she did not have the advantage of years of higher education.

[Constance13 in reply to piglette]

😂😂😂 What else can you do? I'm beginning to think a lot of so called doctors never got above GCE O-level - they wouldn't have passed maths even then though.🤦‍♂️

[piglette in reply to Constance13]

Most doctors are useless at basic arithmetic don’t believe they are good at it. I had my CRP results and the GP said they had gone down, I pointed out to her they had gone UP!! (knowing if one number is greater than another, most 6 year olds can do that!) She then said “well it is not much, I then pointed out that it had gone up by 60% and was quite high, around 50. (Basic arithmetic) She then said “well you could look at it that way”. That is why I don’t think doctors are good at maths. I have got a lot more anecdotes on doctors and maths.

[PMRpro Ambassador in reply to piglette]

Seems a bit poor on logic too!

[piglette in reply to PMRpro]

If they don’t know if one number is greater than another it means they can’t even count!

[Penguin184]

What is printed on the pharmacy instruction label? That will tell outhe dose you are supposed to take because the details are taken from the prescription the doctor wrote. This will prove who was right.

[Janieb293 in reply to Penguin184]

I know I'm a bit scatty at times but I really don't think I would agree to half my Pred in one go!

[Hidden]

I sympathise. I had the same problem and it took more than a week to get the next prescription so I was constantly on edge and stressed if I'd have enough for the weekends? I had a chat with the practise nurse on the phone about the problem and stated my case. She said she'd have a word with the obstinate Doctor, and bingo - I now get 90 on my prescription to last me the month, I'd go this route.. have a word with the practise nurse or manager. Good luck!

[PMRpro Ambassador]

Report it to the practice manager. It is not acceptable for a patient on pred to be shortchanged (for want of a better word) as it is one of the drugs you MUST NOT stop suddenly as it could make you very ill.

[Rugger]

Absolutely agree with PMRpro. Go to the Practice Manager. I've 'complained' about one of the GPs to the senior partner in the practice, through several tissues worth of angry tears! I get 120 x 1mg per month and 56 x 5mg every 2 months on my repeats.

[DevonMichael]

The repeat prescription process is not always helpful on the tapering process. When my 5mg steps involved a switch requiring a 2.5mg tablet my initial collection was rebuffed as I was informed by the receptionist that GP said there was no such tablet (there is!) So I insisted and got the prescription change. Likewise when I moved onto the scale requiring 1mg steps I had to be proactive and initiate the prescription amendments.

[paddyfield in reply to DevonMichael]

Please ignore capitals

Sometimes i THINK it is the prescription admin,bod in the back office who is not quite up to the niceties and may be discouraged from querying more complicated schedules - just a theory. iN THE PAST I have certainly had my share of rUn-ins of the "I HAVE RUN OUT...nO i CANNOT WAIT 3 DAYS FOR A REPEAT" Perish the thought you might have some in reserve and be able to go away for a bit with ut special requests etc.The distress this causes to people with long-term conditions is q uite unnecessary and the constant toing and froing between the chemist and the surgery sorting out mistakes and non-arrivals of the expected scriip has to be seen to be believed .

In MY CASE IT IS ppARKINSONS drugs WHERE SUDDEN STOPPAGE may END YOU UP IN HOSPITAL AND / OR DEAD. At THE MOMENT....touch wood... THEY SEEM TO BE WILLING TO DISH OUT WHATeVER i ASK FOR AND mY PATCHES ARE CERTAINLY EXPENSIVE BUT i'M NOT LIKELY TO BE MAKING A KILLING ON THE BLACK mARKET AFTER ALL !!!

[moskin]

If you have a person doing the prescriptions at your practice and most do,speak to her and explain,she will sort it with your go,it won't be a problem.

[paddyfield in reply to moskin]

Unfortnately they may be the problem - see other post

[Woodly]

When I order prednisolone I do it by Email and explain what my dose is and how many I need to take me through until the dose is next due for review. They seem to take notice and probably welcome the information.

[DorsetLady PMRGCAuk volunteer in reply to Woodly]

Did you realise this post is 4 years old?

[Constance13 in reply to DorsetLady]

😂😂😂 I didn't either! It should come up as "old post" shouldn't it?

Seems little has changed though.

[PMRpro Ambassador in reply to Constance13]

It does - every post and reply says how long since it was put up. It is just under the avatar/name

[Constance13 in reply to PMRpro]

I know! But who reads them when just reading a post. Well, I never seem to!

[PMRpro Ambassador in reply to Constance13]

Needless to say - I do!

[Constance13 in reply to PMRpro]

Yes, well! Enough said!😂😂

[Hidden in reply to Constance13]

🤣🤣me too! I think if you’re experiencing a similar problem to a post that catches your attention you just run with it until it’s too late. Don’t worry as I’ve just read it and liked loads 🤣🤣

[Woodly]

Frankly no. It was the first time I had looked at the website. If it is wrong to add a reply why leave the post up for people to look at?

[Bcol in reply to Woodly]

Morning Woodley. Welcome to the forum, I see you have GCA, a bit more information on your profile, Pred dosage, when diagnosed etc, will help the community if and when you have questions or need further/some information.

There is a huge wealth of experience and knowledge on the forum and it's members are always happy to help. If you get a chance it is well worth a visit to the FAQ's section for a bit of "light" reading.

No one is suggesting that it is wrong to reply to an old post but it is possible that for a post that old the original postee (may have just made that word up)!! may not see the reply and after that period of time their situation is likely to have changed.

However, others may see the reply and find it helpful. Like you I order/request my Pred through email having worked out my estimated needs for a few months.

[DorsetLady PMRGCAuk volunteer in reply to Woodly]

Not it not wrong - it’s just that not everyone will see your reply - the originator will, and anyone who’s following post.

I only saw it by chance because I had notification that you were following me, so I looked at your profile.

HU maintain the platform overall, not the individual forums, so we have no say in what happens to posts.

Old ones are useful for info, which is why they are left up, I was just bringing it to your attention as you are new and I didn’t want you thinking your reply had been ignored if you didn’t get a response.

As you are new you might like to look at the FAQs - healthunlocked.com/pmrgcauk...

[Constance13]

Time for a new doctor!

[Woodly]

I was looking through the website for the first time and thought that my comments might be useful, not particularly for the original poster but for others. I obviously have to learn how it works and how one gets at current threads. I have managed for 5 years without taking part but it was suggested by our group organiser which is why I signed up.Getting back to the original post, I have had no difficulty with my surgery over getting prescriptions for what is needed and when the dosage is altered I let them know

[DorsetLady PMRGCAuk volunteer in reply to Woodly]

If you go into your profile - top right of screen - your avatar (picture) and tap More you can select Email notifications and decide how you want to be advised of new posts etc….

[Woodly in reply to DorsetLady]

Thank you. I will look at it