Forum for Meniere's for Friend

[Marie1479]

I have a friend that is suffering from Meniere's and is looking for a good support group. The only community she found was DeafPlus on Healthunlocked. Any suggestions would be appreciated

[piglette]

There is the Meniere's Society in UK, menieres.org.uk. Also patient.co.uk has discussions on Meniere's.

[Gosingen in reply to piglette]

Piglette thank you for this info; just been diagnosed with Meniere's disease, to this will be most useful for me to check up. At least it wasn't a massive flare with my PMR/GCA. But feeling tired with all the stress etc, hopefully meds prescribed will help, not much fun feeling like you're drunk all the time, and I don't drink alcohol anymore anyway.

[polymy]

Hi there. I too suffer with Menieres as well as pmr. The group I found most helpful was the USA menieres.org site. Lots of knowledgeable people on the site. There are numerous MD groups including a U.K. One which I used to moderate on. I'm not sure if it is still running. My MD is now inactive although I am deaf and have constant tinnitus. Hope this is helpful.

Liz. Xx

[PMRpro Ambassador]

patient.info/forums/discuss...

is the link for one that piglette suggested (the handle .co.uk has been changed to confuse the innocent)

[piglette in reply to PMRpro]

Whoops sorry about that.

[PMRpro Ambassador in reply to piglette]

It may still work - don't know...

Just looked - it does. Yours takes you to the "front page" which is worth a gander for amusement value.

Q: Why are Americans dying so needlessly?

R: Everything but a mention of gun crime though...

I wonder if they thought about the impression created by that link?