at the doctors: hi peeps... I'm pretty sure from my... - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

at the doctors

frannykins55 profile image
8 Replies

hi peeps...

I'm pretty sure from my research, and chats with friends that have this pmr, its highly likely i have the same. the pain on moving is dreadful, everything hurts, whether sitting still, or moving around. i often joke about standing up without sound effects.. good times, but inside i feel so tired of it all. i get dreadful brain fog, and frustrate the heck out of my boss. whats the chances of the doc saying its all in my head, which by the way i have such a sore head, and jaw pain is off the charts..i really don't want to come out of the surgery feeling let down, any advice??

Written by
frannykins55 profile image
frannykins55
To view profiles and participate in discussions please or .
Read more about...
8 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Yes, make an appointment to see doctor. List all your aches and pains, keeping it brief but truthful, including how long you've had them. What you've done to alleviate them, without success. Ask (don't insist, they get a bit stroppy if you tell them) if it might be PMR, or GCA (head and jaw indicate it could be) and ask to have blood tests done - ESR and CRP - which may or may not confirm. If he's a bit reticent, stress you are concerned it may be GCA (and the possibility of sight loss) which should be treated as a medical emergency, but very often isn't.

If all else fails, get yourself to A&E to get checked out.

Please let us know the outcome.

frannykins55 profile image
frannykins55 in reply toDorsetLady

thanks Dorset lady,

i saw a locum doc, and he sent me for full blood test including thyroid.. just gotta see him for results on weds...

also spoke to my older sis, she is in the same boat, and after chatting to her about the arthritic/rheumatic knuckles our Nan had, she is now going to see the doc and ask for tests too.. does it run in the family sometimes??

xx

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply tofrannykins55

Arthritis & rheumatism certainly does. Arthritis is very prevalent on my maternal side. There's not a lot of evidence to prove the same about PMR etc, but many on here have compared it to problems their mother or father had, although it wasn't given a specific diagnosis in days gone by. There seems to be no proven reason we get PMR or GCA but it's not unreasonable to assume it's related to environment, climate, families as well as stress.

I've ensured my children know the symptoms!

Hindags profile image
Hindags in reply toDorsetLady

I think I caught it in the UK. LOL. Spent last September in Scotland and England. Came home and ten days later came down with a strange fluish ailment and the first fever in years. I recovered from that but noticed a bit of pain in my right shoulder, especially at night.Two weeks later, the work of Thanksgiving seemed to have done me in. Right after all that turkey lifting I relapsed with a full blown case.

Is there a higher incidence of PMR/GCA in the UK? It seems that the UK is well represented in these forums.

PMRpro profile image
PMRproAmbassador in reply toHindags

This is a UK-based charity and its forum. There are 4 charities here in the UK - 10 years ago there was one, in Scotland. Five English ladies "met" on the only forum in existence at the time, on patient.info, and started the work to set up the first charity, in the NE of England, which also has a forum. This one followed later. Hence there are a lot of us...

The combination of the excitement of a trip to Scotland and all that turkey hauling was obviously enough stress to trigger a dose of PMR - but you can't catch it i'm afraid so you can't put the blame on Britain! ;-) If you do - your President may want to put a tariff on it... ;-)

There is a higher incidence the further away from the Equator you are and Scandinavian genes are said to increase the likelihood of developing PMR - there is a very high incidence in Olmsted County, Minnesota it is claimed and studies have been based there. In Europe the highest incidence is found in Norway and it falls as you go south - which doesn't stop two of the biggest and most active research groups having been in Italy and Spain! And they really seem to have better idea about it here - most doctors have heard of it, even non-rheumy-trained ones.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toHindags

Hi,

As PMRoro says - please don't blame us for everything - we're busy accusing the Vikings!

Hindags profile image
Hindags in reply toDorsetLady

Thanks for the tutorial. Truly. I do think I just overdid everything last year. So I mostly blame myself. But that doesn't help either. I don't have the Vikings but it has occurred to me that the first inkling of shoulder pain occurred 2 days after our USA presidential elections.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toHindags

Say no more! I wish you well, on many fronts!

Not what you're looking for?

You may also like...

Doctors appointment today (update)

Hi Everyone Well today was my first week in on steroids for the PMR, I have been writing more or...
skibarski2 profile image

Completely at a loss

I have had PMR for 4 1/2 years now. Did get down to 1 mg per day back in October. In September I...
Fimckenz profile image

Slight puffy face at 4 mgs. Prednisone and skin breakout on face.

After 15 months and tapered to 4mgs. Prednisone, I thought my face would be back to normal. Is...
Leeleep profile image

Re: Flare

Please can I ask, can you have a flare (head & neck pain, feel dreadful) with a low CRP & ESR?...
MARION7 profile image

Fatigue at 2mgs.

Hi everybody. Hope you are all keeping safe and well. I am having a bit of a problem and would be...
Alwynk profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.