I went to see the Rheum. a week ago after having a PET/CT scan in June. he said there was no added inflammation. but my bloods were still elevated. They are treating me for GCA. although he says I am an A-TYPICAL case, I have been on steroids for 9mths. and am still on 20mgs. per day. I have lowered 4 times and had to up them back. the lowest dose was 15 mgs. I have now been on 20mgs. for 9 weeks and have never felt as well. My bloods were taken last time I went and I have received a letter telling me that although the elevation has gone down, they are still not back to "normal" I need to carry on the 20mgs. till I see him again, which is in 7 weeks. I am not unduly perturbed as I feel fine and am grateful for that, I just wonder where next as my blood levels don't seem to stay down for long?
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