I was at 10 mg for several months. Then, ESR doubled --now known to likely be due to a UTI--and I went up to 12.5 mg. Since then have reduced .5 every 10 days, by just dropping the dose-not using slow method. I haven't had any symptoms occur with any of the drops this time. I'm at 9.5 mg for the last week. For the last month, I feel very good. No pain in joints or muscles, except the occasional stiffness in neck. My muscles feel different...stronger...like they are working at 100% again instead of at less than 50%. But, I definitely still need to pace myself in order to keep functioning well.
I'm wondering if it is realistic/prudent to keep dropping by .5 mg every 10 days as long as I am feeling good? Or am I setting myself up for a relapse? Does experience show I need to go more slowly once I hit a certain level? Are there any specific symptoms to watch for that would indicate dropping too low vs. some temporary reactions to pred withdrawal?
Thanks for any suggestions.