Hello fellow suffers! Glad to have found you and this forum with so much info about PMR. My symptoms started in November 2014 (a few weeks after a 'flu jab!) and I guess I was lucky on two counts - firstly because my late Mum had PMR I recognised what was wrong and secondly my GP practice was familiar with PMR and, following a blood test, started 15mg Prednisolone a few days later, without any of the messing around that so many other people seem to have experienced.
I was virtually symptomless until the steroids were reduced from 6mg to 5mg per day and symptoms returned with a vengeance. My GP increased the dose back to 6mg but, four weeks on, the pain and discomfort is still there. Mornings are particularly difficult as my lower back, hips and thighs seem to seize up overnight although things tend to ease off somewhat during the day and paracetamol helps when necessary. I'm fortunate in that my arms and shoulders are not too badly affected with just tenderness and slight stiffness occasionally in the upper arms, which doesn't prevent me doing everyday stuff.
Was interested to see so many people suffer from varying degrees of overheating and sweating as this is a issue for me too - thought all my long-finished menopausal symptoms (I'm 66) had returned! Seems both PMR and/or steroids are responsible.
Good wishes to you all.