I am an OAP over 80 and have had Polymyalgia Rheu... - PMRGCAuk

PMRGCAuk

21,031 members39,713 posts

I am an OAP over 80 and have had Polymyalgia Rheumatica for 2 years. Been off Steroids for 8 months and still have pains and stiffness.

V5_82L profile image
3 Replies

I Live in Northern Ireland and would be happy to talk to someone from there if possible or in fact anyone similarly affected. .

Written by
V5_82L profile image
V5_82L
To view profiles and participate in discussions please or .
Read more about...
3 Replies
piglette profile image
piglette

I am afraid I do not live in Northern Ireland, but it does seem like you have come off steroids quite quickly so your PMR may not have gone into remission and could be flaring a bit if you still have pain. However it may just be getting over the steroids of course, which can take a year or so.

Thomas45 profile image
Thomas45

I'm not in NI either. I've had Polymyalgia for nearly 2 years am am down to 5mgs a day of prednisolone. My GP let's me reduce when I feel is right. Normally that's about every 3 weeks, but it's 6 weeks since I last reduced because I've put extra strain on my body recently. PMPro will hopefully reply to you. She's is Italy but is very knowledgeable about PMR. Hiope you find someone in NI also.

PMRpro profile image
PMRproAmbassador

As already revealed - I'm in Italy! If you can use the forum - you can chat to all of us, it just takes a bit longer!

I think there is another lady from Northern Ireland on the Patient.co.uk PMR forum.

And as already suggested - maybe you need to be on a low dose of pred still. In older patients there is possibly a lack of adrenal function that contributes and a low dose for longer often makes a lot of difference to their pain and stiffness. Ask your GP if they would consider trying you with 5mg to see if it makes you feel better - it is a low dose and unlikely to cause much in the way of side-effects.

Not what you're looking for?

You may also like...

I have had PMR for 2 months now and the pain is quite bad, what strength steroids is normal to start off with?

My GP has had me on 5mg to start and now on 1mg and now getting severe pain in my wrists and my...

Hi i have been treated for PMR for nearly 3 years now and I am 47

i caught a nasty cold 3 wees ago which has coincided with a flare up so my GP has put me back on...

hi l am new. I have had pmr for two years. Does anyone suffer from really high temperatures on a daily and night basis? Is it the steroids?

I have been prescribed aledronic acid 70mgs 1 a week, plus adcal D3 2 a Day, have been on them for 9 weeks but have had back pain and groin

Strain for the past few weeks, this is one of the side effects of AA. Tabs was fine on my...

Hi I have PMR and GCA and currently For the last few months I've been getting cramping along inside of my feet and up my legs

whilst in bed. Today I've started with cramps in legs happening often. Could this be inflammation...