Have had some problems with the dissecting cartoid arteries. Having scans every three months. No stent yet. Hip surgery, February. Found a good rheumatologist at NYU Medical. Understands this and that I don't want high doses of steroids, keep them lowered as possible. Of course make sure my eye sight stays intact.
Just before Christmas, early in the morning, I could hardly get out of bed. Left arm, neck and some right arm pain. Muscular pain. Very bad. Could not raise my right arm above my head, nor barely use it all, without very bad pain.
Got through Christmas.
Have not as yet talked to my rheumatologist, yet.
It may be PMR. ?
So, I have these in reverse. Usually it seems, people get PMR, first, then GCA.
May have to increase steroids. Am down to one gram a day. Sometimes I skip on day a week, with no negative consequences. May have to go back up to 15.
Wondering if any of the new treatments, for GCA work for PMR, also. If I have it.
Believe this may be PMR.
Appreciate civilized comments.
best to all, and Merry Christmas, Whittlesey