In retrospect I had undiagnosed PMR 3 years ago lasting for about a year and then suddenly disappearing, only to be followed by leg pain, also undiagnosed until I'd had a great deal of neurological testing, all with non-specific results. I was a very active 64 year old with active border collies and no risk factors for anything and suddenly in a wheelchair. When diagnosed with GCA my worst leg had to be revascularized and the other currently has 56 % blood flow. I started on 50 prenisone 2 years ago and tapered successfully to zero a month ago. SED returned to 5 or below for the whole 2 years. Two weeks ago PMR returned, Sed 30. Am seeing rheumatologist, who started me on 20 a few days ago. When I see him he may suggest combining the prednisone with a prednisone sparing drug - this March I got sideswiped in the dog park and broke my hip, a gentle fall, am okay after the repair. Has anyone had success adding a prednisone sparing drug? I just found this website. I know no one with GCA, especially affecting the legs.
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