I was diagnosed with PMR last June. To cut a long story short I was started on 15mgs Pred and managed to reduce down to 12mgs, which still leaves me in some pain but it is bearable. My rheumatoligst just keeps saying don't worry just keep reducing. I've tried to speak to the specilist nurses but not found them any more helpful. I'm seeing my GP on Friday (this week) and hope to get some sense out of him!!
The real reason my my post is to say that I have been off work since last October with fatigue. So far I don't really feel any better although I have good days and bad days. My worry is that I will very soon have my pay halved and as a single parent I won't be able to pay my bills on half pay plus I have been told that if I'm off for more than 28 weeks I will have to stop claiming working tax credits. If all this happens I will have to give up my house and my son and myself will become homeless. I'm so worried that I'm sure it's not helping me to get better. My son is 14 and just started the run up to his GCSE's so really doesn't need the worry. I don't have any family that I could ask to put us up as I was an only child and both my parents died many years ago. What I want to know is, are there any benifits available until I'm able to return to work.
Sorry this is a bit long and moanie but any advice or ideas would be much appreciated.