I am searching for information on Temporal Arteri... - PMRGCAuk

PMRGCAuk

21,320 members40,432 posts

I am searching for information on Temporal Arteritis. I live in Melbourne, FL and need to find a doctor that knows about this condition.

prettypink profile image
10 Replies
Written by
prettypink profile image
prettypink
To view profiles and participate in discussions please or .
10 Replies
Polywotsit profile image
PolywotsitPMRGCAuk team member

Hi prettypink and welcome to this community. As far as we know, because we are based in the UK, we don't have many members from the US although there night be one or two who can advise you. You might like to have a look at the Polymyalgia Rheumatica group on Facebook. There are lots of stateside members there

Regards

Kate

prettypink profile image
prettypink in reply toPolywotsit

OK, Many thanks for your advise, I will search on. Have a Blessed Day.

ritter profile image
ritter

Hi prittypink, I have Temporal Artoritis or Giant Cell Disease,and the mayo clinic seems to know a lot about it,its inflammation of the artery's mainly the one,s in the head but it can attack any artery in your body so I,m led to believe, also it is to do with your immune system attacking you not a very nice situation,I was diagnosed a year gone Feb,and 15 months down the line and I am still on 30mg of steroids,

I do hope this helps and you get some information other than what I have said.good luck Ritter

prettypink profile image
prettypink in reply toritter

Yes, thank you for the information. This has been going on for over 2 months now and I need answers on what to do and where to go. Very Scary!!! Hope and Pray you are feeling better. God Bless You

jinasc profile image
jinasc

prettypink

There are some Australians on another forum for GCA & PMR. and there is the ability to send Private Messages on that site. . pmrandgca.forumup.co.uk

Polywotsit profile image
PolywotsitPMRGCAuk team member in reply tojinasc

Hi there

Just to let you know that you can send private messages to other members of this community too. Just click on the messages button in the menu bar at the top of the screen.

prettypink profile image
prettypink in reply toPolywotsit

OK, Thank You

prettypink profile image
prettypink in reply tojinasc

Thank You, I will look that up! Have a Blessed Day.

bowler profile image
bowler

Hi there,

You asked "What Dr you would need to see or knows about Temporal Arteritis" The Dr. you need is a Rheumatologist.

prettypink profile image
prettypink in reply tobowler

Thank You I am researching this now. You have been very helpful.

Not what you're looking for?

You may also like...

Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor

https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can...
PMRpro profile image
Ambassador

This a tester to see if I am back in my own body!

If this comes through as Telian then I am up and running again yeeaaaah - if I'm still Lynnc84 then...
Telian profile image

I am down to 10mgs Pred as i am still having pains on waking in upper arms joints in hands. Doctor has started a prog. With Gabapentin

Week 1 3x100gms every day. Week 2 4x100gms Week 3 5x100gms Week 4 6x100gsm At the moment after...
Lionking50 profile image

I am new to this forum and new to PMR (diagnosed 10/24/16). I have begun to research PMR and have a question.

I know the symptoms of PMR are usually worse at night and in the morning - but does anyone know...
Dinty123 profile image