PMRGCAuk | HealthUnlocked

PMRGCAuk

21,034 members • 39,724 posts

alcohol!

I am going to Sicily beginning of October .. … hooray I have got over Covid and am hoping blood test done today shows all ok. Has anyone had the odd glass of...

I am going to Sicily beginning of October .. … hooray I have got over Covid and ...

Havanahula

•23 hours ago

38 Replies

GCA flare and not able to practice what I preach~!

On 9/11, I saw the neuro-ophthalmologist. I've been on 60mg a day since August 11 after three days of 1250 mg infusions. My left eye went dark August 2019...

On 9/11, I saw the neuro-ophthalmologist. I've been on 60mg a day since August ...

Grammy80

•7 days ago

83 Replies

Cognitive function

Another question please, I am getting to know this enemy that has moved in on me.Does PMR or Prednisolone affect cognitive function? I was never the sharpest...

Another question please, I am getting to know this enemy that has moved in on me...

LittleJane

•2 days ago

41 Replies

Is this the end or …?

I’ve been reducing steroids for many months and am now taking one mg every fifth day. I feel ok. I also had a molar extracted a week ago and despite my fears...

I’ve been reducing steroids for many months and am now taking one mg every fifth...

Ana-16

•4 days ago

55 Replies

Methotrexate dilemma?

Hello all, I've now had PMR for almost 4yrs and am currently flitting between 7-10mgs. My problem is that 2yrs ago I started to get bad inflammation in my...

Hello all, I've now had PMR for almost 4yrs and am currently flitting between 7-...

Achyjoints

•11 days ago

90 Replies

Help please

I realise that you cannot give medical advice and I wouldn't ask for it (I intend to contact my GP tomorrow) but I would welcome any input. I was advised to...

I realise that you cannot give medical advice and I wouldn't ask for it (I inten...

LittleJane

•3 days ago

39 Replies

Tapering probably not working but not sure what to do

Hi - I’d be most grateful for some advice as so much has happened, it is hard to tell what to do next. I was struck by what turned out to be PMR literally...

Hi - I’d be most grateful for some advice as so much has happened, it is hard to...

tiredbutoptimistic

•3 days ago

33 Replies

GCA rheumatologist visit today.....60mg it is~!

I'm just getting to the computer at 5:30 PM CST. After reviewing the information from the neuro-ophthalmologist, the rheumatologist said I would have to stay...

I'm just getting to the computer at 5:30 PM CST. After reviewing the informati...

Grammy80

•4 days ago

35 Replies

Low dose of prednisolone

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th had bad pain in my back and joints. Bending my knees is very painful....

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th...

bluepuddy1

•5 hours ago

9 Replies

Travel and Flares

I must express my appreciation for this site and the wisdom imparted daily. Thank you! PMR has been with me since 2019 though it hasn't affected my life too...

I must express my appreciation for this site and the wisdom imparted daily. Than...

Harwen

•1 day ago

21 Replies

How many of us support PMRGCAuk with $$ as Members, I wondered....?

Heaven knows I have been all over this forum, through good times and bad, offering comfort and support. This is also where we can all gather and gain knowledge...

Heaven knows I have been all over this forum, through good times and bad, offeri...

Grammy80

•4 days ago

35 Replies

An Update and General Moan

It's some time since I posted. I've been silent and friends who know me would say that's a blessing. You are a good bunch on here so it's about time I chimed...

It's some time since I posted. I've been silent and friends who know me would sa...

cycli

•19 hours ago

15 Replies

Hair conditioner that works??

Can any one recommend a good hair conditioner that helps dry brittle hair? I had really a lot of hair before taking prednisone ( started last September) but...

Can any one recommend a good hair conditioner that helps dry brittle hair? I ha...

oldlady1415

•1 month ago

95 Replies

Am I being blasé about stomach protectors whilst on Pred?

I have had PMR for 3 and a half years and generally feel lucky that I am not feeling as bad or fatigued as many on this forum. I am certainly not as fit as I...

I have had PMR for 3 and a half years and generally feel lucky that I am not fee...

Stargiver

•1 month ago

94 Replies

PMR24

Hi I was diagnosed with PMR back in July24 after a long delay and have begun Prednisolone treatment which is helping. Unfortunately I do feel unsupported...

Hi I was diagnosed with PMR back in July24 after a long delay and have begun ...

Mountain25

•7 days ago

42 Replies

GCA and what I learned today.....

First, I feel the hugs from around the world. xo I also learned that this wonderful forum is a safe place to unload my fears and experience what it was like to...

First, I feel the hugs from around the world. xo I also learned that this wonder...

Grammy80

•6 days ago

37 Replies

Blood sugar levels

I've read that Prednisolone can spike blood sugar levels. I have a strong family history of late onset type 2 diabetes through the generations. I have ordered...

I've read that Prednisolone can spike blood sugar levels. I have a strong family...

LittleJane

•2 days ago

22 Replies

PMRGCAuk Annual Meeting....I wasn't alone today~!!

After my dress rehearsal last week, I got up at 4:30 AM, Central Time in the States, and was the only person at the Zoom link. I'm thrilled to report that I...

After my dress rehearsal last week, I got up at 4:30 AM, Central Time in the Sta...

Grammy80

•13 days ago

54 Replies

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

Last 2 days not feeling so well, woke with the symptoms which were present prior to the 'swollen eye (uveitis) in the other eye, as well as headache, face ache...

Last 2 days not feeling so well, woke with the symptoms which were present prior...

Fatsiajaponica

•22 hours ago

14 Replies

statins and PMR

Anyone heard about or experienced an improvement in PMR symptoms following stopping of statin medication? One of my friends is convinced that stopping her...

Anyone heard about or experienced an improvement in PMR symptoms following stopp...

Porridgeandgrapes

•1 month ago

81 Replies

Rheumie appt. - Speechless!

I have just returned from my 6 monthly appt with my Rheumatologist. She was talking ‘at me’ before I’d even sat down. Maybe I was rude but I interrupted her...

I have just returned from my 6 monthly appt with my Rheumatologist. She was tal...

Plantmad

•1 month ago

84 Replies

A Flare or Osteoarthritis?

I have problems understanding. I did not feel well when reducing from 10 mg to 8.75. The pain came back at night in my knee with osteoarthritis. My blood test...

I have problems understanding. I did not feel well when reducing from 10 mg to 8...

Swizzly

•6 days ago

35 Replies

adrenal function poor after tests

I’ve been on pred for 9 years now , at 4.5mg I felt there was no way I could reduce anymore , even 0.25 of a mg I couldn’t function , I told the Rheumy and my...

I’ve been on pred for 9 years now , at 4.5mg I felt there was no way I could red...

Gaz227

•9 days ago

41 Replies

Does our thinned skin ever thicken? Down to 2mg Pred and still bruise too easily. Or are we doomed to lifetime bruising?

Just curious about those of you who have completed the Pred and down to 0.

jarn

•19 days ago

56 Replies

struggling with negative thoughts

Hi everyone, I hope you are all doing okay. I need to ask the advice of the forum again, and l hope some of you kind folk can help me. I have been taking...

Hi everyone, I hope you are all doing okay. I need to ask the advice of the for...

Legsandmore

•21 hours ago

12 Replies

Trochanteric bursitis and front groin pain

I was diagnosed May 2023 and have previously posted that I saw a rheumy privately and last time July 2024 he diagnosed pain as age related. I am 72. I...

I was diagnosed May 2023 and have previously posted that I saw a rheumy privatel...

811Yoga

•1 day ago

13 Replies

Temporary sight loss

Hello my friends, I’ve had PMR for 12 years this month. Still battling with trying to reduce Pred . It’s been a nightmare since losing my mum and having...

Hello my friends, I’ve had PMR for 12 years this month. Still battling with tr...

Greensleeves

•11 days ago

40 Replies

10mg prednisolone seems to be the way forward - for now

Had long discussion with GP this morning, weighing up all recent and previous issues. There is the matter of the fact that I suffer from sciatica as well as...

Had long discussion with GP this morning, weighing up all recent and previous is...

gillsky8

•2 hours ago

4 Replies

New to this and lots of questions!

Hello everyone I was diagnosed with PMR in late June this year. I went to the Dr's because I was aching for no reason and about to go on holiday. Saw a...

Hello everyone I was diagnosed with PMR in late June this year. I went to the ...

CJDLSR

•8 hours ago

7 Replies

PMR Relapse with low inflamation tests

About 6 weeks ago, after experiencing more than 3 weeks of early morning stiffness and finally losing the ability to turn over in bed or lift the covers or get...

About 6 weeks ago, after experiencing more than 3 weeks of early morning stiffne...

Rdwr

•6 days ago

28 Replies

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