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Latest activity

  • 4 hours ago
    have been on Pred. for a year & a half. I have one of those Rheumatologists that can only see getting off the Pred. as fast as possible. I took the slow reduction directions shared on this forum to show him and he disregarded it and wants me to do...
  • 5 hours ago
    Hi I have swollen neck shoulders and back of neck, diagnosed gca December have been told its the steroids. Am now on 20mg from 60. Has anyone else been told this
  • 7 hours ago
  • 8 hours ago
  • 8 hours ago
    Hi Just started with freezing feet. Down from 60mg to 20 since diagnosed December. Alway s had frozen head though. Did you have biopsy as seems people that did suffer this. Was told it might be damaged nerve endings but not had confirmed by doctor...
  • 8 hours ago
  • 8 hours ago
  • 10 hours ago
    I'm now on my second week at 30mg prednisolone a day - my stiffness has gobe completely, as has the neck and shoulder pain, but my upper arms, hips, thighs and shins are still sore. Is this normal
  • 10 hours ago
    Good luck with all the excellent advice you are getting from this forum - just another suggestion if you are still getting searing pain - it might be worth getting a referral to a neurologist. I was wrongly diagnosed with GCA and put on steroids...
  • 11 hours ago
    Thank you.. I have started a closed group on Facebook. Its only small at the moment and those that are on there are very newly diagnosed and confused too.. I must point them to this group.. or point you guys to the page on Facebook.. You are all ...
  • 11 hours ago
    Hi Jcqln1505, Mmm, pred side effects are too handy an excuse. My ongoing blurry vision was blamed on high dose pred, reducing the pred has made no difference, the only thing that has helped recently has been when the methotrexate was working. I ...
  • 11 hours ago
    vonne123 & dillydally1: Dillydally1 please see my post of a few minutes ago to vonne123. I think that in Google Images you can get a picture of the parotid gland. When I thought about it, my pain was not really as much in the ear canal as just in ...
  • 11 hours ago
    Thank you.. I went in all distressed and in tears.. left feeling confused but a little hopeful.. Having chatted on here and a facebook closed page am now even more confused haha.. The general feedback off everyone is the fact that I responded to ...
  • 11 hours ago
    vonne123: I am so very sorry for your pain. I want you to know that the first symptom of my GCA was an ear ache. Shortly after developing it I went on a plane and was astonished that the pressure in the aircraft did not make it worse. However, ...
  • 12 hours ago
    Hi Jcqln1505, I truly hope the Rheumy is right but my understanding is fibromyalgia doesn't respond to prednisolone. I think that fibro is too handy a diagnosis when Rheumy's are stumped and can't explain what is happening. I was 47 when I had ...
  • 13 hours ago
    Hi vonne 123. I had the swollen shoulder but only slight ear ache about a year ago, my GP diagnosed a flare up of Temporal arteritis, increased my prednisolone to 60 mg and made an appointment for me to see visit the eye clinic the next day. You ...
  • 13 hours ago
    Im just so confused by all this to'ing and fro'ing.. Will do as rheumy says and hope he is right
  • 13 hours ago
    You are right as far as I'm concerned, PMRpro. Fibro doesn't respond to painkillers - at least none I've tried so far - the only thing which seems to have any effect on mine is amitriptyline. I do take a low dose of Gabapentin, but am intending ...
  • 15 hours ago
    If it all comes back and your GP will play the game you could ask to be referred to Southend since I seem to remember you are not too far from London. On past experience, they may also say you are too young but they are likely to try a form of CT ...
  • 15 hours ago
    I find it difficult to answer queries like these. It would be helpful if when posting people put their details at the end of the post. History. Diagnosed with and date. Started on ?mg. Now on mg. Any other condition. Me: GCA only for 5 ...

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