Just diagnosed with PKD

[Vickymcnorton]

I’ve just had my first diagnosis and waiting to get results on the stage it’s at and whether my liver and pancreas are effected. All a bit overwhelming. Does anyone have any recommendations of good sources I can read up on it? Thanks

[Hidden]

Just the internet in general, I've known about mine for 32 years. Get as many tests done as they will give you.

[atropa]

Here are some of my favourites:

patient.info/kidney-urinary...

pkdcharity.org.uk/

pkdcure.org/

roughlykidneyshaped.wordpre...

ciliopathyalliance.org/

[Vickymcnorton in reply to atropa]

Thank you