No muscle movement

[Itchyislander]

Hi All, new to this forum, but on a few others, trying to get to the bottom of my health problems! This is hard to describe, but I cant get a Doctors appointment until the 11th of next month, and my symptoms may be completely normal! I've had bowel issues, which has made me pay more attention to my pelvic floor. I am trying to do the pelvic floor exercises, however when I am standing I feel no tightening at all. I feel more when sitting or even leaning. The only way I can describe it is when you clench your fist and then try to clench it more, there is only a very small feeling of movement- tightening. Am I just over thinking things and this is normal??? I am also 10 days in to my period- usually finished by day 7 so have all sorts of possibilities running through my mind!

[Skye22]

I also have bowel issues diagnosed with neuronal intestinal dysplasia, with severe constipation compromised with bowel, bladder and abdominal adhesions. I suffer with constant pain in abdomen more severe in pelvis. Recently had tests as I too had painful pelvic spasms with little feeling in bottom and unable to have a bowel motion independently. Further tests revealed a condition called levator-ani syndrome which means my pelvic floor muscles lock in painful spasms and limited feeling in bottom called anismus. My conditions are quite severe and i think you would benefit from seeing your doctor to put your mind at rest, people can sometimes get embarrassed when talking about bottoms , unfortunately I'm not one of those!! After many years i have only just been given a definitive diagnoses and live with daily bowel irrigations and manual extraction. I hope your bowel issues are not as severe as in my case and living in constant pain. Ask your doctor for tests for an early diagnosis to put your mind at rest. Good luck.

[peters1 in reply to Skye22]

prayed for you...so sad for your issues

[Yacoub in reply to Skye22]

Sorry for your pain! Colorectal also diagnosis was Levator Ani! Pain from the minute my feet hit the floor till I go to sleep. Sometimes can't even sit long enuf to eat. Feel my heartbeat in my butt (also not shy, or a place to be shy, so no worries) I have been to so many specialists before and now after with different treatments none of which work. Hate that you have this too! I'm 4 yrs in with this. My life is NO life. Have to lay done in back seat with pillows to go to Dr sometimes. Hard to sit to just get my hair done 💁‍♀️ so my gray shows way too often. That is the LEAST of my concern really. Can't carry my new little granddaughter, just so freakin sad. Hard not to be depressed and am on meds for that and back, hip, knee surgeries.. I feel bad when so many others have such worse issues (ie. Cancer) you know what I mean. But the constant pain changes you and your entire life. I just bought a manual wand from Amazon and have used it once. Does feel better. But supposed to use 3 times a day. We have to learn to take care of ourselves! As a woman we aren't always good at that. I AM going to use as directed and will post to let people know if I have had success. 🙏 I believe in God, but all my praying and crying have not helped. I'm 63 which may seem old to you, but I have a lot I want to do and can NOT imagine being in this pain for the rest of my life! On heavy Opiods several times a day.. doesn't even take the edge off. So now my body is addicted to these and still in pain! So nice to have someone to talk to or learn from. Thanks and the very best to you and your journey. There has to be an answer!!! Take care

[Skye22 in reply to Yacoub]

So sad to hear of someone going through life in pain as I do. I have a long list of conditions far too many to write about but I have suffered for nearly 30yrs, I am in my early fifties and i too have a lot of living to do. For years I asked why me! For years I saw a lot of doctors! For years I endured surgeries 13in total all supposedly told would help my pain, how wrong were they!! I have lost so much life to Ill health. I struggled to get through many years of raising a fami!y as a single parent and studying but I finally graduated at age 50!! Even landed my dream job . Suddenly in 2015 after being able to cope and manage my conditions i took dreadfully ill and there i was back to not coping and seeing lots of doctors. and having to stop working. This time I took control i researched a lot and dug my heels in to finally getting diagnosed definitively after 30years of trying!! What have I learned, find a doctor who will really truly listen, I have been blessed with "4" "FEMALE "doctors all treating separate symptoms but these symptoms are all interelated, ( CAPPS). Each doctor shares with each other what treatment is best for me!! Yeah I still take a lot of meds , yes I endure a lot of treatments, and yes I will always have I'll health and a lot of pain!! Big difference now is i focus on NOT what I can't do but how can I ADAPT what I used to do to enable me to have some semblance of a normal life. Apologies for a long post but for everyone who is suffering endless pain don't give up fight for that diagnosis, fight for your treatment and don't give up as we all deserve a chance to LIVE!!! 1 final thing, I came across an article discussing CAPPS - complex abdominal pelvic pain syndrome some of it may not apply to everyone and some of the article has medical jargon, stick with it it was an absolute revelation!!! For my levator-ani pain and spasms i have just started vaginal botox very painful but if it helps a bit at least enough to sit like a normal person!! Good luck on your journeys!!

[Yacoub in reply to Skye22]

Thanks so much for your post! Congrats on graduating, I don't care what age it was YOU did it. Your so young to have suffered for so many years! You have a great attitude, unbelievable considering your circumstances. Seems as though it's very difficult to have a short text when we are sharing our stories, so no worries there. Mine was too. I'm going to research about CAPPS. Thanks to you. I also want to sit like a normal person! Good luck to you. I will talk to someone about the botox. I used to have in my face, why not there too! Best wishes for you as well.