Pelvic muscle inflammation?

[Els58-]

Since 8 years I have on the left side of the low abdomen/pelvis/vagina pain and pressure and worst of all all the time extreme urge to pee. Every movement I make, I do feel it extra. There are no organ problems and most probably no pudendal nerve injury. I think there is a chronic pelvic (floor ) muscle inflammation or a sort of hernia. (also after bowel and urinating and having sex the problems increase dramatically)

Pelvic floor therapy did not work until now. I can not walk properly and have a lack of sleep. I do feel hopeless because of no diagnosis and no help. Who has any idea where I can get diagnosis and maybe help? Thanks. Els58-

[Icybonz12]

You said therapy didnt work till now? So are you starting to feel better?

[icrelief]

You may want to ask your healthcare provider to check for Interstitial Cystitis and Pelvic Floor Dysfunction.

Check out the Interstitial Cystitis Association at ichelp.org for more information.

Best wishes!

[Htemo]

Sorry to hear how you are suffering.

Have you been assessed by a uro-gynae specialist? Has Short Pelvic Floor Syndrome (chronic spasms of pelvic floor muscle) been considered?

[Els58- in reply to Htemo]

No I did not see a uro/gyn. I went to urologist and gyn. Both checqued the

organs which are normal. Yes, I went to a pelvic therapist, she did trigger points. It did not really help. I like to have a muscle and tissue scan if possible before therapies start without diagnosis. In Europe pelvic muscle scans are not easy to get. Do you know maybe?

[Htemo in reply to Els58-]

So did the therapist say you have trigger points? If so then that would seem to suggest that the muscle is in spasm and not working as it should. Have you been offered Botox into the pelvic floor to release the spasms for a longer duration, ie effects last months rather than moments/hours? Also when your bladder was checked was it done under a general anaesthetic? Also have you undergone a defecating preprogrammed MRI or other exam to rule out prolapse playing a part?

Are you able to receive treatment in the UK?

[Els58- in reply to Htemo]

I am not living in the UK but I am in that state of mind I will go anywhere where I may probably find help. Later on I will find out with the insurance etc. No I had no botox and no exam prolapse playing part. ( I do have the feeling a muscle is not working in the left low abdomen, it feels very bad and walking is difficult and gives pressure. When the bladder is full or stool is in the lowest part of the intestine it feels better( as a support) and I can walk better.

[Stager in reply to Htemo]

I have chronic spasms and pelvic floor issues. They start like clockwork noontime most days and muscle relaxers don't help much. Also physical therapy seems to aggrevate it. I am on the couch then for hrs trying to lay still with a heat pad. Any thoughts anyone?? This has taken over my life for going on 10 yrs.

[Pinky2233]

Hang in there. If you have had improvement with your therapist it is slow but safe or consult more pelvic therapists. They all have different views. Therapy is slow but someone slow and steady wins the race.

Dr. Moldwin at LIJ hospital in ny is considered one of the best urologists and has an open mind. Maybe his department could recommend someone closer to you.

[jquintile]

See a urogynecologist and a neurologist. I have the same thing...have had botox and ketamin vaginal injections, the first ones haven't helped...sometimes it takes several injections (they put you under) and Medicare and other health insurance cos. cover it because it is not a cosmetic use of botox.....find a PT who specializes in womens' issues. and an Osteopath who can do vaginal manipulation. The neurologist gave me gabapentin and tramadol...the gabapentin is for peripheral nerve damage caused by singles in my eye and the antiviral drugs I was on for 8 months, so I wouldn't go blind..(eye shingles can eat your cornea)....the tramadol is for pain.... If you're under a lot of stress that can make things much worse....it's a struggle but don't give up. I've seen 17 doctors and finally got a diagnosis.....

[Els58-]

Hi, thanks for your reply. I am living in a country where it is not that easy. Can you give me names of doctors, I might probably go there.

[costagran]

for nearly 4 years I've had what you've got.

after all my tests, the only diagnosis was chronic pelvic pain which to me is a very lame diagnosis.

one of my test results said my uterus was tilted back and irregular which I guess means flopping to one side.

another result said I had an irregular ligament which may be crucial but I cant find the paper it was written on.

neither can the specialist find that information on his screen so I felt a right idiot.

does your pain sometimes wiggle about as though there is a snake trying to get out.?

can you remember how it all started 8 years ago.

I ask because at the start of mine I was quite ill with fever, chills, indigestion, heartburn, and I lost weight dramatically and my hair was falling out.

I also got complete brain fog and was a ghastly grey colour.

my symptoms have changed over the years.

started with pencil thin poo, then went to diarrhia. now am getting better I daresay with the help of different herbs.

the very painful sex is not so bad now.

so all in all I am just left with this pain.

recently I have researched interstitial cystitis and am drinking loads of water which I nuetralise with baking powder or slice of lemon.

also taking marshmallow root tea and flax seed.

but like you, I don't know whats going on.

I am with Spanish healthcare and quite frankly they're doing their best.

the private doctors just fleece you.

I don't believe they want us to get better.

sorry but I've become a cynical grumpy old woman.(67)